Greetings!! Like many of you I suffer from various and interesting - a strange way to describe ailments right??? I have epilepsy as a result of a battle with encephalitis some 20 years ago, major back pain possibly from all the seizures suffered during the battle (I remember nothing of this - just came to and found my life turned upside-down and inside out!!!) and also the fact that I now seem to have numerous Tarlov Cysts varying in size from 23mm, 20mm and 13mm and an annular tear ?, and the cysts are causing extensive cortical erosion and widening of neural pathways. ??????
Folks, Most of this I do not understand but I do know that I survive on alot of Panadol - with the help of the fruit of the vine at the end of the day (-8 i.e. a glass of wine helps!!!! Do we not get sick of being in pain, so few people understand what it is like to be in pain all the time and to have to wait for the 4th hour to be up so we can take the next dose. Support and understanding of this is what I need I guess. Thankyou for listening.
Today is the 2nd anniversary of the passing of my darling wee Mum, she understood and was my biggest, strongest rock - all 4' 9", 6.5 stone of her!!! Oh how I miss her, what an angel she was/is!! (-8 Love u Mum xxxx,

Hi there. I just came upon your post and wanted to welcome you to Neurotalk. Others will come along and direct you to a forum that might peak your interest. We are a very friendly group of people and you'll find this a great place to come, visit and ask your questions or you might find that you just might help out another person.

Pain is not our friend (I actually had a doctor once tell me 'oh, you feel pain, that's good". I wanted to bop him on his head.

So here's hoping that you find better days ahead.

Again, Welcome!!

Melody
P.S. I grow my own food, and underneath my signature is a link to my youtube channel. I have lots of funny videos up of my husband trying out new gadgets that I have purchased. I experiment on him all the time.

KauriNZ,

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here, just let us know how we can assist, you will see we are are supportive and relaxing place. Our shoulders are here for support in many ways.

I see you have found your way to the Tarlov Cysts forum. You may want to check into the epilepsy forum. I to have epilepsy but have not had one in two years.

http://neurotalk.psychcentral.com/forum11.html

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Welcome to NT!
What a great place for support and understanding! Lots of good information also.
I'm sorry for the reason which brings you here. It's good to be in a place with others who really comprehend what you are going thru.
Darlene has given you a great starting point. Just holler if you need help finding your way around.

Make yourself at home - you've got friends!

Caring,
Rae

PS: I'm so sorry that you've lost your Mum. It's obvious that you two were very very close.

Hello KauriNZ and WELCOME to NeuroTalk!

Here is another link that may be of interest to you.

Tarlov Cyst
http://neurotalk.psychcentral.com/forum73.html

Please feel free to roam around and join in anywhere.

If you have any questions or need any assistance please don't hesitate to ask. Someone will always be around shortly to help in any way that we are able.

I hope to see you around the board.

Abbie

Welcome to neuro talk. You will find good company here and lots of understanding. I hope you have better days ahead of you without so much pain. Yes living with cronic pain is so very difficult. You could not find a better place for support. Others will be here to welcome you too. Glad you found this site. ginnie

Hi everyone, just joined this group as I was searching for some answers about the never ending "moves" of RSD. I have had RSD for 19 years now. Got it after an operation. Was not diagnoised with RSD until 2002 when the symptoms of these strange feelings came back full force. Started out with RSD in my left leg, then it went to my right. Now I have almost full body, with the new additions in the last few months of my ears and left eye. Last night a new area --my head. This is what brought me here as I was searching the www to see if anyone had RSD symptoms in the head. Also got veritgo with the RSD.
Your welcome intro is very good

Hi there Verna:

Wow, it seems RSD really did a number on you. And vertigo, now THERE's something that can do a person in. My husband has had bouts with that and it landed him in the hospital. He keeps away from salt and it's diminished.

I wish you well, and again, Welcome to our little world at Neurotalk.

Melody

Verna,

Hello and welcome to NeuroTalk. Happy to see you have come to be with us.
There are great number and caring fellow members here, just let us know how we can assist, you will see we are are supportive and relaxing place. Our shoulders are here for support in many ways.

You should check in the following forum:

http://neurotalk.psychcentral.com/forum21.html

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene