Hi Everyone--

I am new here and looking for others that are going through the same thing. We (my hubby and I) have two daughters--13 and 8. The 8 yr. old has had a few "oddities" since birth. We went to a genetic specialist when she was just ten weeks old. This specialist pointed out all of these "odd" things, but after MRI, blood work, etc. all was OK. (There were other doctors, but I don't want to bore you with all of the details!)

Now she is eight. She complained of headaches and our pediatrician ordered blood work (all OK) and an MRI. The MRI shows several white spots on her brain. The MRI report stated a dx of possible patchy leukodystrophy (hope I spelled that right). However, after seeing a peds neurologist last week, he stated that we need another MRI in three months for comparasion. Three months is a long time to wait.

This neurologist said that since she can (or is) still learning (reading, writing and math), that he didn't think it could possibly be the leukodystrophy. So what is the white spots?

I didn't state earlier--she is ADHD and takes 10 mg of Ritalin 2 times per day.

That's all I have for now.

Marcy

I just want to Welcome you to NT!
You've found the right place for great support and information. Although I'm not familiar with these symptoms your daughter is having, I know there will be others who do and you will get some wonderful feedback.

I'm sorry for what you are being faced with and I hope and pray that you can get some answers soon for your daughter.

Caring,
Rae

Hi Marcy:

Just wanted to stop by and say hello and welcome you to Neurotalk. Hard time you are dealing with, I can imagine. From one mom to another, you are not alone. Lots of nice people here. Others more knowledgeable than myself will surely come along and give you more info.

Again, Welcome

Take care of yourself,

Melody

Marcy,

Nice to see you have come to be with us. There are great number and caring fellow members here, just let us know how we can assist, you will see we are are supportive and relaxing place. Our shoulders are here for support in a number of ways.

At a time like this going through your daughter situation is hard wait for 3 months. Please give her a great big hug for me. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene