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Old 03-25-2007, 08:22 PM #1
Rae Moan Rae Moan is offline
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Join Date: Mar 2007
Location: Fargo, ND
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Rae Moan Rae Moan is offline
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Join Date: Mar 2007
Location: Fargo, ND
Posts: 1
15 yr Member
Default New member who has BMS
Hello, I'm new to this site. I found it from a blog about Burning Mouth Syndrome. I was diagnosed with it over 3 years ago and have tried many treatments all with no or very little success (clonozapam, neurontin, effexor, Vitamin B12, protonix). I recently had an MRI of my brain to rule out MS and they found that I probably have a pituitary adenoma. I was hoping that this may be related to my BMS but the neurologist says that there is no way the 2 would be related. His encouraging words were that any treatment he recommends would be a shot in the dark and the tx may be just as bad a the symptoms!! Very discouraging... I'd appreciate any feedback from others who experience this miserable syndrome!
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Old 03-26-2007, 07:53 AM #2
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Chemar Chemar is offline
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welcome to NeuroTalk Rae Moan

so sorry for what you are suffering with BMS

try also posting on our General health and Rare Disorders Forum
here is the link
http://neurotalk.psychcentral.com/forumdisplay.php?f=2

and here is the Index to all our other Forums
http://neurotalk.psychcentral.com/index.php
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Old 03-26-2007, 09:06 AM #3
pabb pabb is offline
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how much B12, for how long, and which route? and which form.....
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