[EZNana]

Hi,
While searching for info on pseudotumor cerebri I found this site. I'm in the middle of a dx workup but the team is leaning toward this as my diagnosis. These past 4 weeks have been more than just a little bit weird. I started out w/ what I thought would be a regular eye appointment-went in cause I was having some pain behind my eye & a little blurred vision. I've gone from being told it was Thyroid eye, to a CT wherein the concern was a tumor, to an MRI that showed fluid in optic nerve sheaths-bilateral w/ tortuosity, to a lumbar puncture yesterday where I was told my opening pressure was slightly elevated. I'm waiting now to get the official results from the doc & find out what the next step is. So far my care is being managed by an opthamologist, I'm guessing next step is to see a neurologist. Just want answers & to know what I have to do.

[MelodyL]

Originally Posted by EZNana

Hi,
While searching for info on pseudotumor cerebri I found this site. I'm in the middle of a dx workup but the team is leaning toward this as my diagnosis. These past 4 weeks have been more than just a little bit weird. I started out w/ what I thought would be a regular eye appointment-went in cause I was having some pain behind my eye & a little blurred vision. I've gone from being told it was Thyroid eye, to a CT wherein the concern was a tumor, to an MRI that showed fluid in optic nerve sheaths-bilateral w/ tortuosity, to a lumbar puncture yesterday where I was told my opening pressure was slightly elevated. I'm waiting now to get the official results from the doc & find out what the next step is. So far my care is being managed by an opthamologist, I'm guessing next step is to see a neurologist. Just want answers & to know what I have to do.

Hi. Welcome to Neurotalk. Just wanted to welcome you. Someone will come along and direct you to the proper forum.

I hope you are feeling a bit better and that your vision improves.

Try and stay positive.

Sending warm thoughts and hugs your way.

Melody

[Darlene]

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, we are a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[Rrae]

Welcome to NT!

I'm sorry you are dealing with this issue, especially not knowing for sure what is going on....
I hope you can start getting answers soon. Meanwhile, feel free to poke about the forums. There is always something or someone around every corner which might give insight.

It's great that you are here.....

Caring,
Rae