[april9328]

Hello,
I am new here and I am hoping to find some info on IVIG. My Father is receiving his first treatment today and I just have no idea what to expect as far as what type or progress he will make. He is so far tolerating it well with no side effects.

The background is that he was a normal healthy 69 year old and developed a severe headache which sent him to the ER. He had a severe brain infection and had surgery to remove an abscess plus 3 months of IV antibiotics. The infection is now gone and MRI is clear, but from the moment he woke up from surgery he was unable to move his muscles hardly at all.

Now 5 months later, with much physical therapy he is able to do very minor things for himself. but he needs assistance with everything. He can walk about 50 feet with a walker and assistance from therapists.

A few months ago he was diagnosed with Myasthenia Gravis and we were told this is the reason he lost all muscle control. Before surgery, he has no issues at all with any muscles. Like I said he is about to finish his first IVIG in a few hours. He will have 5 in a row and then 2 a month for 6 months. Does anyone have any experience with this type of issue? Can anyone offer us any advice on what to expect from IVIG? I know everyone is different, but the Neuro doctor says he is the perfect candidate for this treatment. I am hoping to see him get up and walk out of there by the end of the week, but of course I don't want to get my hopes up. I am just very unfamiliar with how much progress IVIG can offer.

Thanks so much for any help!!

[Lara]

Hello,
Welcome to the NeuroTalk Support Groups.

If you repost over on the
Myasthenia Gravis Forum
you're sure to get information and support from others who have been through this treatment that your father is currently undergoing.

I wish him all the best and of course, you too.

take care.

[Kitt]

Welcome april9328.

[Darlene]

april9328,

It is great to have you come and be with us. There are a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[Doxylady]

Hi there and welcome!

I got excited when I read your comment, as I also experienced severe symptoms after major surgery. I had had wishy-washy symptoms since my late 20's, but didn't have major problems until having a surgery that lasted several hours. I don't have a definite diagnosis yet, but my family doctor and local ER doc both suspect either MS or MG.

Any answers from the forum will be appreciated by all of us!

Thanks!