Hi all,

My daughter was born with a condition called metopic craniosynostosis, it's when a baby is born with part of their skull fused.

She had the big surgery at 10 months old, she didn't heal properly and had surgery 3 months ago, the surgeon put in titanium plates from ear to ear to fill in soft spots. She also had a PEEK implant put in over her left eye to help with bone resorption and contour her forehead.

She has been telling me that she is getting "funny" feelings in her head, the surgeon told us that she can get these strange sensations for a while. I was wondering if anyone has any information at all that they can share with me?

I trust her surgeon 100% but I keep thinking about long term effects with all this titanium in her skull.

I really hope that I joined the right support group.

Thanks in advance.

Janet