[DaniRSD]

Hi my name is Dani and I have RSD in my right leg well foot but has traveled past my knee. Total numbness and severe burning in my foot with grinding weird pain in my knee plus above my ankle it feels like the circulation hurts? Anyone experience that?

I feel so alone like no one understands I am not happy right now with my Doc because I am seriously under medicated but I'm dealing with it. All I do though is lay in bed and try to get my leg warm.

I am 32 love my 2 Tonks and Balanese this disease is ruining my life and could ruin my relationship if I don't get better quality of the life. The Doc has me in a hard position because I'm afraid to tell him the medicine he gave me didn't work. The LSB did help take the edge off. I had to stay awake and it was horrid to me.

Supposedly I am at the best place on Long Island but this Doc has to get to know me to trust me and I know that takes time. It's upsetting because I can't say these meds with the LSB's worked great. I think it's spreading to my right hand and def left foot so I'm really scared.

I'm looking for advice from people who have this disease and can maybe lead me in the right direction for TX. I know one size does not fit all but just knowing I am not alone gives me much comfort!

Looking forward to this community!
Namaste`~Dani