[mwilliams05]

Hey everyone! I dont know if this is the right site, but will give my info on my situation... In 2008 i was diagnosed with pseudotumor cerebri and had to have emergency brain surgery (VP shunt). I have been in the hospital a few times with increased intracranial pressure since then and also had a baby in 2010. I have only had 3 lumbar punctures since the surgey and every time my opening pressure has been way too high even with my shunt. I started again with sever headaches and dizziness again in December 2011 and have been constantly seeing my neurologist and NS since then. About 3 1/2 weeks ago my whole left side has been tingly and somewhat numb and still is. Jan 19 2012 my opening pressure on my lumbar puncture was 38 (normal between 12-18) and they drained the excess CSF off to make the pressure around 16. When i seen my NS again he reset my VP shunt in hopes of helping. Well, I also have a collapsed right ventricle in my brain (the side my shunt is on) and i am still having severe headaches, tingling, numbness, severe dizzy spells and so forth. My Neurologist is referring me to another specialist in Vanderbuilt now. I seen my surgeon today and he said it dont sound like a shunt malfunction but cant explain why my pressure has been so high constantly even after my surgery..... Has anyone ever experienced anything like this or have any input on what could be going on???? Thank you all for taking the time to read my post!

[MelodyL]

Originally Posted by mwilliams05

Hey everyone! I dont know if this is the right site, but will give my info on my situation... In 2008 i was diagnosed with pseudotumor cerebri and had to have emergency brain surgery (VP shunt). I have been in the hospital a few times with increased intracranial pressure since then and also had a baby in 2010. I have only had 3 lumbar punctures since the surgey and every time my opening pressure has been way too high even with my shunt. I started again with sever headaches and dizziness again in December 2011 and have been constantly seeing my neurologist and NS since then. About 3 1/2 weeks ago my whole left side has been tingly and somewhat numb and still is. Jan 19 2012 my opening pressure on my lumbar puncture was 38 (normal between 12-18) and they drained the excess CSF off to make the pressure around 16. When i seen my NS again he reset my VP shunt in hopes of helping. Well, I also have a collapsed right ventricle in my brain (the side my shunt is on) and i am still having severe headaches, tingling, numbness, severe dizzy spells and so forth. My Neurologist is referring me to another specialist in Vanderbuilt now. I seen my surgeon today and he said it dont sound like a shunt malfunction but cant explain why my pressure has been so high constantly even after my surgery..... Has anyone ever experienced anything like this or have any input on what could be going on???? Thank you all for taking the time to read my post!

Hi there Hon.

Welcome to Neurotalk.

Here is a link to a forum that will be of tremendous help to you.

http://neurotalk.psychcentral.com/forum92.html

I wish you well on your road to recovery. And congrats on the baby.

Melody

[Darlene]

mwilliams,

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, welcome to a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Looks as though you are finding you way around. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[Rrae]

Welcome Aboard!

You're sure to get good feedback here. This is a very caring and understanding bunch.
Please feel at home here and post anywhere you see fit.

Holler if you need help finding your way around the forums.
It's great to have you!
Rae