I was diagnosed 2 years ago with Long thoracic Nerve Palsy. I am looking for others like me to so I can gain some understanding. I have a few questions that would be more related to other females who have nerve damage in the same general area as mine. So to the other women like me out there it would be great if I could hear from you.
Thanks

I am not a woman, but I have what is known as Parsonage Turner Syndrome, or also known as Neuralgic Amyotrophy. One of the impacts I have with this is that my long thoracic nerve damage has caused both of my scapula to "wing". It is a bit worse on the right than left. Long thoracic nerve palsy can be caused by PTS, or other things. Do you know a cause for your case? If it is related to PTS/NA- or maybe they mentioned Brachial Neuritis? Then there is a support group on Facebook.

Thank you so much for responding to my thread. It has been a little complicated. I had a sports injury (softball) when I was in my 20's and had a complete tear of the rotator cuff. The dx: at that time was not good since then I had gained most all function and rom back. Later had to have surgery again due to dislocations but two years after the 2nd surgery the dislocations started again after a mass showed up on my back left shoulder blad. This was removed and it was not cancer how ever they did feel that at first I sufferd from Parsonage Turner Syndrome but later the Neuro team after several test found that my Long Thoracic nerve had stoped working all together and that it was not from Parsonage turner sydrome. They are really not sure what the caused the Nerve to stop working weather it be the compresion of the mass, the trauma to that shoulder but it doesnt look as if it is going to come back and I continue to fight inflamation and muscle spasms. So any information would be great!

Thanks

jawell,

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, welcome to a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Check into the following forum there you will find assistance:

Thoracic Outlet Syndrome
http://neurotalk.psychcentral.com/forum24.html

Looks as though you are finding you way around. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Well, I am interested in how they have now said you do not have PTS. Inflammation and muscle spasms go right along with PTS. It is possible that inflammation had started related to the mass and gave you PTS. It is also possible that a surgery to remove the mass could have damaged the long thoracic nerve, although I doubt you would ever get one of your doctors to suggest that. If you go to this site, (http://www.umcn.nl/Informatiefolders...ophy__id-i.pdf) you will find one of the better explanations of PTS/Neuralgic Amyotrophy out there. Just because your long thoracic nerve has stopped working does not mean you do not have PTS. It is part of it. My LTN stopped working right in 2006. My shoulders still pop and snap. I have little strength in my arms. My scapulas still wing although I have learned to use other shoulder muscles to help stabilize my scapulas. Most pages on PTS suggest that you have complete recovery in a few years, and most doctors do not go beyond that cursory view. However, most people I know of who have this only had partial recovery at best after longer than two years. It takes a long time to get any nerve re-growth, and even then it is possible to have a “blow-out” and loose that if you over-do exercises too soon. It is also possible to have an on-going attack that makes good recovery nearly impossible.