[hopeathome]

Hi everyone, I'm new to this site and would love some feedback on my problem.

I have burning mouth syndrome. I had to get a full upper denture in feb. of 09.
For those of you that don't know one usually get a immediate denture the day of the extractions.Which was the case with me. 4 months later I got my permanent. I had no burning problems with the 1st denture however 12 days after getting the permanent denture I started having BMS symptoms. It has now been 18 months and I have tried everything. At first I didn't know it only happened when I was wearing my denture because I was trying to adjust to them and left them in except to sleep.

The mystery is that I do not have the symptoms unless I have the denture in. I had the denture re cured in the event it was not cured properly. That did not work. I take alpha lopioc acid 400mg 2x a day and a herbal remedy "Bomarax" compounded to help BMS.
My last hope was that I had developed a allergy to acrylic so I had a test denture plate made out of vinyl ( sometimes used for acrylic sensitive patients)
Sadly, the vinyl didn't work, I still have the BMS but only when I have the denture in. The good new is I can find relief without my denture... bad news, I work and can't go without teeth.

I want so badly to find some help. I supplement with B12 and zinc. I have eliminated all my meds except for cymbalta, neurontin and klonopin. The latter two I take for restless legs. I am at my wits end. I spend every free moment online trying to figure it out to no avail.
My next move is to try Elavil.
Any suggestions?

Thanks,
Hope

[Alffe]

Hi Hope and welcome to NeuroTalk. Here is the link to our Dental Forum..

http://neurotalk.psychcentral.com/forum89.html

I'm glad you have joined us and hope you will find an answer to your questions.

[Darlene]

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here to assist you. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[alandale815]

Dear Hope:

You need to come to terms with this BMS or you will go crazy. I almost did. I also have dentures and have had them for about 4 years ago. I have tried B12 also and have stopped taking some of my meds and have tried almost everything that you have tried. This is a terrible "enigma". Cold water helps, but I have burning with or without my dentures in. The left side of my tongue, near the tip burns also. I was very angry last year and prayed a lot. I used to pray at night, "Mary, please help me get through the night. This year I seem to be dealing with my BMS much better. I will chalk it up to prayers and Jesus.

Good luck to you!

Dale

[hopeathome]

Originally Posted by alandale815

Dear Hope:

You need to come to terms with this BMS or you will go crazy. I almost did. I also have dentures and have had them for about 4 years ago. I have tried B12 also and have stopped taking some of my meds and have tried almost everything that you have tried. This is a terrible "enigma". Cold water helps, but I have burning with or without my dentures in. The left side of my tongue, near the tip burns also. I was very angry last year and prayed a lot. I used to pray at night, "Mary, please help me get through the night. This year I seem to be dealing with my BMS much better. I will chalk it up to prayers and Jesus.

Good luck to you!

Dale

Thanks, I do pray a lot, and it is making me crazy.I have the symptoms mostly with my dentures in. So now I am trying to adjust to the idea ( as depressing as it is) going without my dentures. I am only 54 and used to feel pretty at 5' tall with long red hair and sparkling blue eyes. but now, the sparkle is gone and I seldom leave the house. When I am out and wearing my dentures the pain is so bad that all I can think of is how soon can I get back to the car or better yet home and take these things out. I will keep praying...thanks again

Hugs,
Hope

[hopeathome]

Originally Posted by Alffe

Hi Hope and welcome to NeuroTalk. Here is the link to our Dental Forum..


I'm glad you have joined us and hope you will find an answer to your questions.

Thanks for the link Alffe...The thought has occurred to me many times. I found the link helpful. I have PTSD and have been living with it for many years and doing great. When I had to get dentures I thought it was the worse thing in the world! I was so embarrassed.Wearing dentures has such a stigma to me. Little did I know that in less than 6 months from then I would have this incapacitating Burning Mouth Syndrome. I am lucky in some ways I guess...I can find relief by taking my denture out. Now going around toothless is just more than I cope with. I do not wear them at home and now I don't go out much at all. I know I sound pitiful..I feel pitiful. I know I am in the middle of a full blown depressive episode. I just don't care. I need to have lower dentures made soon and I can't imagine my whole mouth burning. Now it's just my tongue and roof of my mouth and the gums that set in the denture.
Anyway, Thanks for listening

Fondly, Hope

[EMPATH64]

Hello,I can certainly empathize with you. I have had this for 3 months Im depressed, It goes on. So thank you for your information ,lets get thru this!