Hello everyone, I'm 39 and was diagnosed with RSD due to a work injury. I had a spinal cord stimulator installed in 2006. Due to my surgery my RSD spread to my incisions (neck, midback, & lower back). I have RSD bilaterally on my extremities. I also have bilateral carpal tunnel syndrome & many forms of tendonitis bilaterally. I was recently told that my leads from my SCS that are on my neck, in my spinal cord space have gone bad. Now they want to redo my surgery. I am hardwired from my neck to my lower back. I'm terrified of them having to redo my surgery due to where the leads are. I don't know how safe this is and so if anyone who has had a spinal cord stimulator redone please let me know how it went. I can only remember how after surgery I ended up with neck and back issues, my RSD spread to my incision sites and I have had many bad reactions to medications. If there's anyone out there that can give me some words of wisdom, please help me. Jessica

Welcome to the forum!

I'm sorry you are having these problems. So many of us know exactly what RSD can do to our quality of life. So, your SCS has caused this spread? I know this happens and you certainly are not alone.

I think you've found your way to the RSD forum. There are many very caring people there and you can get alot of good information.

Despite the spread, does your SCS offer any relief?
We have a forum here specific to SCS discussion if you'd like to talk to others who have had revisions or even had them removed. Here's the link to get you there:

http://neurotalk.psychcentral.com/fo...ysprune=&f=118

It's great to have you here!

Caring,
Rae

Jessica,

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. There are great number and caring fellow members here, you will see we are supportive and relaxing place. Just let us know if we can be of any help. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene