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Old 04-04-2012, 08:10 PM #1
lined_in_silver lined_in_silver is offline
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Join Date: Apr 2012
Posts: 138
10 yr Member
lined_in_silver lined_in_silver is offline
Member
 
Join Date: Apr 2012
Posts: 138
10 yr Member
Default hi everyone-glad I found you

Hi there, I stumbled upon this siteafter doing a search for undiagnosed chronic pain and the atory I read was so similiar to mine I am finally feeling a little hope after 1 1/2 years of misery . I have been to almost 10 doctors who cannot disagnose me and I must say Im feeling alone and helpless.
to sum it all up:started with bladder issues (urgency,frequency,burning with no infection)
pelvic pain and pressure
burning sensation around tailbone,up and.down.back, down thighs
numbness and tingling in hands feet and face (not anymore)
laporascopic surgery with endometriosis and cyst removed
Most recently abdominal bloating and pain

Bloodwork is all ok, other than low iron and low creatinine output
I have polycystic ovarian syndrome
28 years old, no children
Anxiety and depression my whole life

tried amytyptaline, worked for a while but only for urinary frequency and helped me sleep
currently taking painkillers as they dull the burning and pain
Tylonal, advil, etc do.nothing. Take clonazepam for anxiety for 7 years now.
hypoglycemic although all blood tests show normal glucose levels. I have always thought I had diabetes as I shake and nearly pass out when I dont eat for a few hours, and crave sweets all of the time.

Doctors have given up on me and are even reluctant to give me pain meds.
My quality of life is very low. I can barely make it through work because the burning under my skin is so severe. my social life failed a long time ago as well as my relationship.

Im sure there is more useful info but I am hoping.gor some insight from.people.who have experienced similiar pain . ANY guidance would keep me going.

thanks for reading. sorry about punctuation and spelling-using a touchscreen phone . : )

my heart goes out to those who also suffer and are not getting the help they need .
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