hi everyone. I'm new to this site. I was diagnosed with fibromyalgia15+ yrs ago. Two yrs ago I had a bad flare and since have been having lots of problems with the nerves and muscles esp. In my arms and legs. i've lost 50+ lbs for no reason, throw up 2-4 times a wk, found I have a bad heart valve, and low thyroid among other things. My doctor is convinced my problem is much worse than other fibro patients he's treated and has tested for M.S. (among other things) I have spots on my brain, but they said no worries abt it. Havent had a lumbar puncture cause I have no insurance and cant afford more testing. My blood tests show inflammation and low thyroid, but no help there. I'M frustrated because of HOW TERRIBLE I actually feel, but I look okay so everyone (esp. My relatives that dont live with me and see what I go thru daily)) dont seem to believe. So hard to suffer in silence with everyone thinking im just depressed and weak-Minded! Ive become fairly uncoordinated, fallen down our stairs 4 times and broke three toes in the proces over the last yr. Ive fallen over from the dizziness thathits. My eyes go blurry sometimes at nite, my lips and tongue fall asleep, along with my limbs...so many problems I cant think of them all (oh ya...my memory is shot now). Does anyone relate? I really need a friend to talk to before I go crazy...please write if u relate. Thanx much!:-)

Welcome to NT!

Indeed MANY people here will relate to your post! This is such a wonderful place of caring and support. I know what you mean about family/friends not 'seeing' or understanding what you are going thru. For me, that's been one of the most frustrating things about this pain battle.
Let me point you straight to the Peripheral Neuropathy forum. It is loaded with good information. You'll be amazed at how many people are dealing with this very frustrating condition with many facets.
Here's the link to get you there:

http://neurotalk.psychcentral.com/fo...aysprune=&f=20
My low thyroid functions were a direct result of my neuropathy.
It'll give you some sense of peace of mind once you gain a better understanding of what peripheral neuropathy is all about. There are ways to combat it (read the info in the top section of the PN forum).

I'm sorry you are faced with all these symptoms, but glad you've found NT. You'll get great feedback here.

It's great to have you!

Caring,
Rae

Bobbie,

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. There are great number and caring fellow members here, you will see we are supportive and relaxing place. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene