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Old 04-18-2012, 08:33 AM #1
GraceInTheRain GraceInTheRain is offline
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GraceInTheRain GraceInTheRain is offline
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Join Date: Apr 2012
Posts: 7
10 yr Member
Default In TBI Recovery. Greetings!

Hi....!
I just found your forum last night and am so glad I did!
Wish I had known about it months ago.
In Feb. 2010 I had a rollover accident and was hospitalized for 2-3 days and a couple months later entered a fantastic mTBI outppatient program to help me deal with the vision issues, cognitive issues and the psychological component.
I saw a Speech Pathologist, an Occupational Therapist and a NeuroPsycholgist PH.d for several months when I had ANOTHER HEAD Injury.

I was on a steep flight of old stairs and fell. *I have amnesia for that entire day, so if it weren't for a witness, I would have no idea*.
i was unconscious for several hours and ultimately had to be air lifted to the nearest large hospital where I spent 4 days.
Then I went to one of ***THE BEST*** Rehabilitation Hospitals in the Region .
I was there for a month.

Now I'm dealing with all the residual symptoms of TBI.
Debilitating Chronic Daily Headache, Retractable Migraine, Vision, Hyperacusis and Light Sensitivity, ((Actually I developed a SensoryModulation Disorder in general))
Dizzy Spells (not too bad) Tinnitus **I hear both Buzzing and MUSIC in my Ears**
and There's Cognitive Deficits as Well.

If there's ONE THING I can say with absolute conviction is I am So Incredibly LUCKY AND BLESSED.
Some of the patients at the Rehab hospital were so severely and profoundly traumatized that I find it difficult to complain.

So.....a Little about me.
I'm 50, **how the HELL did THAT happen??** LOL
Have had 4 children, live in a small where I have what I call the "sweet cottage on the prairie'.
a Double Lot on the Corner, Surrounded by the Quintessential White Picket Fence.

I haven't been released to go back to work as of yet; my attorney urged me to apply for SSD.
Next Friday I have an appointment set up by SS for a Neuro Psych Exam and I am a bit concerned after reading/hearing that the 'whole shebang' can be a set up for denial.
(((Like If I answer honestly about pain and mood, It could look like I'm malingering)) and if I do poorly on certain areas, the tester could REMOVE the data that shows I'm impaired.

I am hoping the psychologist is Ethical and there is "no such arrangement' set up between him and the department.

Am on a LIST of medications -----and recently had 25 botox injections from my neurologist to try and curtail the migraines.
Right now all I see is most of my neck muscles are parlized, so I can't lift my head if I look down, haha.....My big ole heavy head has two positions. chin to chest and Up.
And if I want to lift it up after looking down at the floor, I have to use my hands to guide.
weird.

Well, It's taken me several sittings to get this comprised.
My attention span and vision headaches prevent me from doing too much in one sitting.
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Rrae (04-18-2012)

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Old 04-18-2012, 04:00 PM #2
GraceInTheRain GraceInTheRain is offline
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Join Date: Apr 2012
Posts: 7
10 yr Member
GraceInTheRain GraceInTheRain is offline
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Join Date: Apr 2012
Posts: 7
10 yr Member
Default Hello? :+)

Was it something I said??
Am I approved to post yet? Seems Kinda Quiet ...LOL....


Quote:
Originally Posted by GraceInTheRain View Post
Hi....!
I just found your forum last night and am so glad I did!
Wish I had known about it months ago.
In Feb. 2010 I had a rollover accident and was hospitalized for 2-3 days and a couple months later entered a fantastic mTBI outppatient program to help me deal with the vision issues, cognitive issues and the psychological component.
I saw a Speech Pathologist, an Occupational Therapist and a NeuroPsycholgist PH.d for several months when I had ANOTHER HEAD Injury.

I was on a steep flight of old stairs and fell. *I have amnesia for that entire day, so if it weren't for a witness, I would have no idea*.
i was unconscious for several hours and ultimately had to be air lifted to the nearest large hospital where I spent 4 days.
Then I went to one of ***THE BEST*** Rehabilitation Hospitals in the Region .
I was there for a month.

Now I'm dealing with all the residual symptoms of TBI.
Debilitating Chronic Daily Headache, Retractable Migraine, Vision, Hyperacusis and Light Sensitivity, ((Actually I developed a SensoryModulation Disorder in general))
Dizzy Spells (not too bad) Tinnitus **I hear both Buzzing and MUSIC in my Ears**
and There's Cognitive Deficits as Well.

If there's ONE THING I can say with absolute conviction is I am So Incredibly LUCKY AND BLESSED.
Some of the patients at the Rehab hospital were so severely and profoundly traumatized that I find it difficult to complain.

So.....a Little about me.
I'm 50, **how the HELL did THAT happen??** LOL
Have had 4 children, live in a small where I have what I call the "sweet cottage on the prairie'.
a Double Lot on the Corner, Surrounded by the Quintessential White Picket Fence.

I haven't been released to go back to work as of yet; my attorney urged me to apply for SSD.
Next Friday I have an appointment set up by SS for a Neuro Psych Exam and I am a bit concerned after reading/hearing that the 'whole shebang' can be a set up for denial.
(((Like If I answer honestly about pain and mood, It could look like I'm malingering)) and if I do poorly on certain areas, the tester could REMOVE the data that shows I'm impaired.

I am hoping the psychologist is Ethical and there is "no such arrangement' set up between him and the department.

Am on a LIST of medications -----and recently had 25 botox injections from my neurologist to try and curtail the migraines.
Right now all I see is most of my neck muscles are parlized, so I can't lift my head if I look down, haha.....My big ole heavy head has two positions. chin to chest and Up.
And if I want to lift it up after looking down at the floor, I have to use my hands to guide.
weird.

Well, It's taken me several sittings to get this comprised.
My attention span and vision headaches prevent me from doing too much in one sitting.
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Rrae (04-18-2012)
Old 04-18-2012, 04:09 PM #3
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Jomar Jomar is offline
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Jomar Jomar is offline
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Default

I'm sorry no one has replied to you yet.

You can copy/paste your post over to our PCS/TBI forum and I'm sure you'll get some activity soon.
here is the link for it -
http://neurotalk.psychcentral.com/forum92.html
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"Thanks for this!" says:
Rrae (04-18-2012)
Old 04-18-2012, 08:28 PM #4
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Laugh Hello GraceInTheRain!

Welcome to NT!

Thanks for the intro! My goodness what you've been thru! I'm so sorry. Your strength shows through your writing and you've kept your sense of humor. With these qualities - you're sure to be on the winning side!

Jo*mar has pointed the way to the TBI forum where you'll meet many lovely folks who care. Make yourself right at home and scroll thru the other forums and post wherever you may feel inclined.
It'll be great seeing you around and I hope to get to know you!

It's wonderful to have you here!

Caring,
Rae
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Old 04-19-2012, 12:39 AM #5
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Darlene Darlene is offline
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Darlene Darlene is offline
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Wink Good to meet you!!

GraceInTheRain,

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Here are a great number of dear friends to listen when you are in need of ears. You will find out we are supportive and relaxing place. You sure have been through a great bit of accidents. Just happy to see you have made it.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene
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Old 04-19-2012, 09:15 AM #6
GraceInTheRain GraceInTheRain is offline
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Posts: 7
10 yr Member
GraceInTheRain GraceInTheRain is offline
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Talking Thanks so Much for the Welcome!

**waving madly**

[BI I didn't want to sound all "Look at me, Look at me"", hahha...

I just thought I had to receive welcome notifications in order to post elsewhere.
There's another forum I belong to (dog related), so I have a general jist of the format, but every moderator's rules are different.

So....I'm gonna skip over to the link Jo*mar posted, and try to get cozied in.
:+)

Thank you again for the welcome.
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