Hi,

I was diagnosed with Rsd/Crps in June/July 2011 (from an injury in Feb. 2011 and surgery in April 2011). This was documented and briefly mentioned to me with no explanation except look it up on internet and do some research. Looking back on it, I was really stupid with going along and trusting the physician and OT...with nothing really being done.

To this point, over a year later I have still been in OT 2-3x/week (except for a 6 week time in Dec. when the surgeon said it was all in my head, nothing was wrong and caused a flare that was almost back to where I was in November), eating Motrin 800mg 4-6x/day, and just had a stellate ganglion block 5 weeks ago (which resulted in another flare up involving the rest of my arm).

Anyone have any advice on a GOOD physician in Michigan that can point me in the right direction and get me on the path to feeling better? It seems this is unknown and i keep getting bounced all over with no positive results.

Also, anyone also suffering from this..any helpful tips on how to deal with this condition in everyday life would be appreciated.

anne523,

Hello and welcome each of you to NeuroTalk. Happy to see you have come to be with us. Here are a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

I see you have made it to the RSD/CRPS forum, as you can tell their some fellow members there to help.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Hey everyone.. I was also just diagnosed from an accident in beginning of this year and am scheduled with my first SGB in a week. I was 15 and struck by a car leaving me with a brachial plexus tear and parlayed my right arm. I had a SGB when I was in the hospital because of the excruciating pain and had success alongside exp nerve grafting. This was in 1990. I was able to live w manageable pain until 2011 car accident and the pain in my arm became well unbearable. I unfortunately have ortho issues with my shoulder also but the pain from the nerves was worse of the two. Putting my down few days a month and progressing to daily when I was rear ended at a stop light in Fed 2012 and now I am basically in bed 20 hours a day since. Had to move back in with my parents, lost all my clients and can't even bath my 4 year old. My 16 year old has been awesome. So my neuro sent me to UofM and they diagnosed me with CRPS with on set from a tear in feb. Feel like I made it this far thru life, actually trained in gym for years and survived a near amputation of my leg to be handed my butt on a platter with CRPS. I'm on 100mg Fen patches and taking up to 8 30mg 0C a day with neurotic 3x day. I've been on meds for a year and this is all I can do to function. I pray that the SGB will allow me enough relief to begin therapy. With the already complex nature of my preexisting injuries it's all I can do to stay positive but I know God didn't bring me this far to have me in bed the rest my life. The burning is so bad and I bite back the tears when my 4 yr old climbs into my lap she deserves better. Sorry for venting on your post. I just joined and reading so many similarities brought me to tears, I'm over asking why and moved on to how much more..... My list of what I want to be able to do again in long and I won't to beach the other day only to be in misery from the breeze. I need the support of all of you, my sanity depends on it. Thank you for sharing you inspiration and hope. I won't give up today.

MommadukesCRPS,

Hello and welcome each of you to NeuroTalk. Happy to see you have come to be with us. Here are a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene