[villier]

Hi everyone,
I am just finding my way around this excellent site. Mrs D and Glenntaj have already been in touch as I posted on the wrong site to start with, I am introducing myself my name is Marie from Loch Lomond in Scotland,I am looking to hear from people that have the same or similar symptoms or anyone that wants a chat. I
understand Peripheral Neuropathy comes under a lot of umbrellas.
I feel so alone at times as friends and family do not understand what problems you have. My problem is Small Fibre Sensory Neuronopathy not to be confused with neuropathy (to do with dorsal root ganglia), at the moment I feel really ill with flu like feeelings and hands and feet are getting worse( not neuropathic pain) finding it harder to use extremities, my other symptoms are throbbing burning pain in extremities, tingling iin face and perineum. my worst fears now are I feel my memory and hearing is being affected, I also have to use intermitant catheters . Please would love to hear from anyone with similar problams

[mrsD]

Have you seen a neuromuscular specialist? Have you been evaluated for multiple sclerosis?

Flu like feelings, weakness can be signs of diabetes. So I'd get that checked too. Also flu like symptoms can be signs of infection.
A festering kidney or bladder infection can cause systemic signs like you describe.

It sounds like you need to see a doctor ASAP to get further evaluation. People can have more than one thing going on.
Once they get a diagnosis of ANYTHING, they tend to blame further symptoms on that, and fail to get evaluated for new symptoms.

[villier]

Thanks again Mrs D I managed to get an appointment with my GP today it turns out I have a UTI he has given me anti-biotics, I mentioned my concerns to him and you are right he is blaming my condition on all my symptoms,I was very disapointed with him as he has been very good over the past 8 years that I have had the condition. I see my neurologist in a few weeks time and I can only hope that he will arrange more tests to evaluate my situation. Thank You.

[Darlene]

Marie,

Hello and welcome each of you to NeuroTalk. Happy to see you have come to be with us. Here are a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Happy to hear about seeing your doctor. Please keep us up to date on your condition.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[villier]

Thank you Darlene I am so glad I joined this site I do not feel so alone now, I have been given so much information I understand my condition a bit better now and am a bit more knowledgeable and will be able to ask the right questions when I see my neurologist soon.