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Old 04-12-2007, 07:43 PM #1
radmom32 radmom32 is offline
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Confused New to RSD and Chiari I Malformation

Hi Everyone,
I'm Beth from the Outer Banks in NC and I have been dealing with RSD in my left foot since Dec. 06 from a MVA. I've been lurking around a few boards learning a lot about RSD and making sure I am getting the treatment I need. I just found out Monday about the Chiari I Malformation so I have been doing quite a bit of surfing the net. If anyone has any info to share that would be great. I wish all of you as pain free days as possible.

Take Care,
Beth Radigan
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Old 04-12-2007, 07:59 PM #2
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Hello welcome to NT.
Another combo dx - so sorry about that.
I hope you are able to find and get good treatment for both.
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Old 05-19-2007, 09:07 PM #3
ANGELAMARCH23 ANGELAMARCH23 is offline
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Cool Hello And Good Luck!

Quote:
Originally Posted by radmom32 View Post
Hi Everyone,
I'm Beth from the Outer Banks in NC and I have been dealing with RSD in my left foot since Dec. 06 from a MVA. I've been lurking around a few boards learning a lot about RSD and making sure I am getting the treatment I need. I just found out Monday about the Chiari I Malformation so I have been doing quite a bit of surfing the net. If anyone has any info to share that would be great. I wish all of you as pain free days as possible.

Take Care,
Beth Radigan
YEAH GOOD LUCK TO YOU MAKE SURE YOU FIND A GOOD DOC. I AM HAVING SURGERY ON THE 23 AND FOUND A GOOD DOC. GOOD LUCK!
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Old 05-20-2007, 08:18 AM #4
LIZARD LIZARD is offline
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Hey, Beth.

I just wrote Angela about this. Check out these sites:

www.wacma.com
www.ASAP.org
www.chiarione.org
www.conquerchiari.org

Also, make sure to find a good, experienced neurosurgeon so you'll know whether you're a surgery candidate or not. A neurologist will be of no help whatsoever.

Good luck!

LIZARD
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Old 01-03-2010, 11:57 AM #5
typicalfam typicalfam is offline
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Default Chiari and RSD

I, too, am dealing with RSD like symptoms that I suffered with right after my failed surgery and now came up randomly after 8 years. I am trying to get doctors help to do an MRI because I don't know if it is the RSD itself or if something has changed in my neck to cause compression.. How can I tell??

Good luck to you and I wish you all the best! Attend conferences thru the Chiari orgs. and be informed.. NEVER have surgery unless you have done a lot of research and are fully confident in your doctors knowledge of this condition.. Believe me.. I learned the hard way!!

Good luck.. ( I can't type as finger's are numb now!!)
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