[nazzie]

Hi I am new to this site. After 2 years of pain I finally met Dr.Robert Thompson. After his examination and testing it was determined without a doubt I have neuro TOS.. I am having surgery in two days and needless to say, very scared. Any comments greatly appriciatede.

[fclegg]

Originally Posted by nazzie

Hi I am new to this site. After 2 years of pain I finally met Dr.Robert Thompson. After his examination and testing it was determined without a doubt I have neuro TOS.. I am having surgery in two days and needless to say, very scared. Any comments greatly appriciatede.

Hello
I am new to site today. Had Neuro TOS surgery June 7. Very slow recovery. I have had to ice my arm many times a day, down to about 3 - 4 times a day. My elbows are always swollen and they hurt. Dr Donahue found I had nerve scarring like that of a volleyball player. (BTW, US Olympic beach volleyball player Dahlhauser has venous TOS, having rib resection upon return from Olympics). Hope to return to work after 12 week recovery. Need to get other side done. My chronic tendonosis has not been helped by surgery, so my days doing computer work (40 hrs a week) are limited anyway. But Dr Donahue said that doing nothing will not take care of situation, as phys therapy did NOTHING. My sister had venous TOS surgery 2 yrs ago, she also should have her second side done, but is trying to postpone that. Very strange diagnosis. Dr Donahue (Mass General Hospital) said some of us are just made a certain way so we develop this. Most likely an under-diagnosed condition.

[fclegg]

Originally Posted by nazzie

Hi I am new to this site. After 2 years of pain I finally met Dr.Robert Thompson. After his examination and testing it was determined without a doubt I have neuro TOS.. I am having surgery in two days and needless to say, very scared. Any comments greatly appriciatede.

Hello
I am new to site today. Had Neuro TOS surgery June 7. Very slow recovery. I have had to ice my arm many times a day, down to about 3 - 4 times a day. My elbows are always swollen and they hurt. Dr Donahue found I had nerve scarring like that of a volleyball player. (BTW, US Olympic beach volleyball player Dahlhauser has venous TOS, having rib resection upon return from Olympics). Hope to return to work after 12 week recovery. Need to get other side done. My chronic tendonosis has not been helped by surgery, so my days doing computer work (40 hrs a week) are limited anyway. But Dr Donahue said that doing nothing will not take care of situation, as phys therapy did NOTHING. My sister had venous TOS surgery 2 yrs ago, she also should have her second side done, but is trying to postpone that. Very strange diagnosis. Dr Donahue (Mass General Hospital) said some of us are just made a certain way so we develop this. Most likely an under-diagnosed condition. Not sure if I already posted this reply, sorry if a duplicate!

[Rrae]

Welcome to NT!

You've come to a great place of support and understanding!
Check out the TOS forum (if you haven't already).....lots of very caring people here!
http://neurotalk.psychcentral.com/fo...sprune=-1&f=24


Nazzie, here's wishing you the best as you have your upcoming surgery. I know you must be nervous but I'm sure you have a great medical team who are looking out for your best interests.
Please stick around and let us know how you are doing!

Caring,
Rae

[brmr19]

hello to you. there is a thoracic outlet syndrome forum where you can see what a lot of other went through

[Darlene]

nazzie,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on her condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene