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Old 08-22-2012, 03:51 PM #1
Savy Savy is offline
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Savy Savy is offline
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Help Suspect LEMS

20+ years ago I was treated for auto-immune symptoms by a doctor that is no longer in practice. I am experiencing weakness in my legs. I suspect the problem is Lambert-Eaton Myasthenia Syndrome. I need to connect with a doctor able to diagnose an treat. (A doctor with experience treating MG may also be a good choice.)

I live in central California.

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Old 08-22-2012, 05:16 PM #2
ejh2 ejh2 is offline
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Default me too

Quote:
Originally Posted by Savy View Post
20+ years ago I was treated for auto-immune symptoms by a doctor that is no longer in practice. I am experiencing weakness in my legs. I suspect the problem is Lambert-Eaton Myasthenia Syndrome. I need to connect with a doctor able to diagnose an treat. (A doctor with experience treating MG may also be a good choice.)

I live in central California.

I was diagnosed with lems early 2010.I don't know any neurologists out there but when you do find one ask about DAP (diaminopyradine).I have been told that it's hard to get and experimental , but I get around so much better and I wish you alot of success in your search.
jim
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Old 08-22-2012, 07:07 PM #3
MaryTSteckart MaryTSteckart is offline
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Default suspect LEMS

If you can do some more research online, I'm sure you can find a specialist in California--or ask for a referral to Mayo Clinic for further evaluation. My appointment with Mayo is 10/16/12. Keep in touch--email me if you want my phone number and we can talk. Call me, and we can talk *edit* (contact member via forum PM or email)
Welcome to Neurotalk !
Steck

Last edited by Jo*mar; 08-22-2012 at 07:10 PM. Reason: personal info removed
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Old 08-23-2012, 12:43 AM #4
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Darlene Darlene is offline
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Wink Nice to meet you!!

Savy,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Click onto the following forum, there will be someone there to assist you.

Autoimmune Diseases
http://neurotalk.psychcentral.com/forum44.html

Please keep us up to date on her condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene
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"Life without God is like an unsharpened pencil -- it has no point.
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"Thanks for this!" says:
MaryTSteckart (09-23-2012)
Old 09-03-2012, 12:20 PM #5
Savy Savy is offline
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Quote:
Originally Posted by ejh2 View Post
I was diagnosed with lems early 2010.I don't know any neurologists out there but when you do find one ask about DAP (diaminopyradine).I have been told that it's hard to get and experimental , but I get around so much better and I wish you alot of success in your search.
jim
DAP is not an option for me. I have a seizure disorder.
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