[cassey1]

hi been having strange problems for 5 yrs now getting worse over the years. started in my foot. felt like something was stuck in the bottom of it. then over time, the pain got worse. i was experiencing severe burning in my foot across the top, then the pain was going up in to my leg constant burning twitches numbness etc 5 yrs later is it all starting in the other foot and leg.where any pressure is constant agony even the bed clothes are pain full the musle twiches are every where, iv had lots of tests etc but the dr said it could be small nurve fibure neropathy. but he wants to wait and see, as my feet and legs go numb the left side is the worst, iv got to the point now i feel like saying please no more tests iv had enough. it is not mortoms neroma which was first supected or planter factitis, so ask my self what ? thank for reading any comments are welcome. ps i also have bladder issues where i had a supa pubic catherta.

[Darlene]

cassey,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Click on to the following forum, there should be help there:

Peripheral Neuropathy:
http://neurotalk.psychcentral.com/forum20.html

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[Rrae]

Welcome to NT!

So glad you found us! You'll be amazed at all the support and care there is here! Darlene pointed you to the forum that is loaded with info and many others who understand what you are going thru.

You aren't alone in this. Friends are on the way!!

Caring,
Rae

[ger715]

Originally Posted by cassey1

hi been having strange problems for 5 yrs now getting worse over the years. started in my foot. felt like something was stuck in the bottom of it. then over time, the pain got worse. i was experiencing severe burning in my foot across the top, then the pain was going up in to my leg constant burning twitches numbness etc 5 yrs later is it all starting in the other foot and leg.where any pressure is constant agony even the bed clothes are pain full the musle twiches are every where, iv had lots of tests etc but the dr said it could be small nurve fibure neropathy. but he wants to wait and see, as my feet and legs go numb the left side is the worst, iv got to the point now i feel like saying please no more tests iv had enough. it is not mortoms neroma which was first supected or planter factitis, so ask my self what ? thank for reading any comments are welcome. ps i also have bladder issues where i had a supa pubic catherta.

I am retired so not lookiing for forms to fill out for disability and really don't need the cause for this. This is PN and where it came from is so often difficult to determine. I have not bothered with all these test.

I have stasis dermatatis of the feet and ankles, travelling to the knee. I thought this might be the reason for the terrible burning of the feet and ankles. My internist, when mentioned this burning to him said "that's not from your Stasis; that is from your neuropathy". Didn't need to bother with testing. Also about 10 years ago was diagnosed with mortons neuroma. That neuroma is between a couple of toes; usually on the under side of those toes. This does not even mimic that. I am surprised a doctor would even suggest this as a possible problem; especially going up the legs.

Unfortunately, the best that usually can be done is to treat the pain. You would need to see a Pain Specialist for this. Many doctors are not aware of the pain of neuropathy.

In addition to the periperal neuropathy (PN); I have had spine fusion/laminectomy surgery about 5 1/2 years ago so I have the pain from waist down and am under the care of a Pain Specialist.

Hope you don't have to do anymore testing. Like mentioned previously, unless you need to do this for disability, etc., the tests will rarely tell you where this came from and usually given the name idiopathic PN.


Gerry)