My name is Pollee and I was diagnosed with Cervical Dystonia about 2 years ago by my neuro. I am hoping to share some of my experience with other's and maybe learn something new about this.

I am interested in trying to find out how other's are managing with this, and what treatments that have been found to work the best.

I have good and bad days, and truly believe that there is a way for me to get this into a remission!! One can hope anyway!!

[Darlene]

Pollee,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

[azoyizes]

Hi Pollee and welcome to Neurotalk! You will find many friendly, caring, and helpful people on these boards. We're glad you found us!

[ginnie]

Welcome to Neruo Talk. You will find alot of good information and fantastic people here. Lots of compassion mixed with great conversation. Glad you found us. ginnie

[Abbie]

Hello Pollee and Welcome to NeuroTalk!

I see you have found your way around a little bit...
Here is another forum link that may be of interest and help to you.

Movement Disorders
http://neurotalk.psychcentral.com/forum65.html

Please feel free to roam around any and all of the forums. Join in any where you feel comfortable. Help others where you are able and ask questions when needed.

You will find the people here at NeuroTalk are some of the nicest, very caring, understanding, helpful people you could ever want. If you need a shoulder to lean on...you will find one. If you need someone to listen...you will find an ear. If you just want to vent...go right ahead.

I look forward to seeing you around the board.

Abbie

[MelodyL]

Originally Posted by Pollee

My name is Pollee and I was diagnosed with Cervical Dystonia about 2 years ago by my neuro. I am hoping to share some of my experience with other's and maybe learn something new about this.

I am interested in trying to find out how other's are managing with this, and what treatments that have been found to work the best.

I have good and bad days, and truly believe that there is a way for me to get this into a remission!! One can hope anyway!!

Hi Pollee (love your name).

Welcome!! I see you have been given the forum that might help you.

I wish you well and hope that you get the help you need.

All the best.

Melody

[(Broken Wings)]

Hi,

So glad you found us here.

You'll find lots of help here.

Take your time and look around. There's lots of resources and people here to get to know.

Take care...

I just wanted to say thank's everyone for all the kind words, and suggestions for where to find information.

I'm so glad I found this site, and look forward to getting to know everyone.

[ginnie]

We are glad you are here too. I always try to find out a bit about the folks who find us. What their disorder is. I am sorry you have this cervical dystonia. Also found out it can be caused by a medication I have taken in the past. The gene marker hasn't been found. Where are you located? Do you like your neruologist? Are you getting all the help you can possiibly get? I do care, and will keep you in my thoughts and prayers. ginnie

I am from Lincoln, Ne, I do have a neurologist that I like. It is just that he only has one option for me. Maybe I am being silly, but don't like the only one option. I just think that there has to be something else. I am just finishing paying off a rehab hospital and then working on paying off the x rays and brain scan. After I get things in a little better financial standing I am going to go to he university hospital to see what their neurologists say.
My manager at work wants me to go now, but I explained to her that they will most likely want to restart all the tests that I had two years ago before being able to confirm what my Dr is telling me or offer me any other options. I am just trying to keep somewhat in a budget, and not let this thing take over my life completely. That is only one reason though, the other I believe that I can make this better that I don't need to pump myself full of medicine to feel ok again. I have to hold on to that for as long as I can.

Do you have Dystonia? Where are you from?

My thoughts & prayers are with you as well.
Pollee