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Old 09-23-2014, 06:03 PM #31
wildzev wildzev is offline
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Default Small Fiber Ganglionopathy

Hi All,
I would love to talk to others who share the same symptoms - burning pain throughout upper and lower extremities, mouth, trunk- I am on Lyrica, nortriptlyine and Butrans for the pain. Any new meds out there, or new research to be keep me hopeful?
Thanks!
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Old 09-23-2014, 06:12 PM #32
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Lightbulb

The research has been looking at ganglion damage from either
drugs/toxins or vaccines or viruses.

There are some papers out there that identify certain people who fail to make the growth factors to heal up dorsal root damage.
This is a genetic error.

The suggested treatment is probably going to be stem cell based.
There have been some papers on Science Daily. I've put them up here at times, so use our search function "stem cell" and those posts should come up in a list.
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Old 09-23-2014, 06:19 PM #33
Lara Lara is offline
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Hello wildzev,

Welcome to the NeuroTalk Support Groups.

We also have a
Peripheral neuropathy Forum

You don't have Celiac disease do you?

If you need any help finding your way around the forums, please just post and someone will help you.
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Old 09-23-2014, 06:24 PM #34
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Welcome wildzev.
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Old 09-23-2014, 06:25 PM #35
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Welcome burningbody.
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