[debi62]

My name is Debi..I'm new to the site..recently found out
I have neuropathy... I can use all the help I can get
From anyone with this problem
Thank you

[Lara]

Hi debi,

Welcome to the NeuroTalk Support Groups.

Here's the link to the
Peripheral Neuropathy Forum
and
PN Tips, Resources, Supplements & Other Treatments Forum

I'm sure if you read and post there you'll get lots of good info and support.
take care

[Kitt]

Welcome debi62.

[Darlene]

Debi,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on her condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[St George 2013]

Originally Posted by debi62

My name is Debi..I'm new to the site..recently found out
I have neuropathy... I can use all the help I can get
From anyone with this problem
Thank you

I am also Debi and was born in 62 ! Too funny.

I have small fiber neuropathy that affects my feet, legs, hands and upper right arm. I was dx'd via skin punch biopsy in Sept of last year. This coming after 6 rounds of chemo (taxol/carbo) and being diabetic. Hasn't been a good journey so far and I have a long way to go in finding the kind of relief to give me some of my quality of life back. But onward I go !

Right now the only thing I'm taking for the SFN is gabapentin, 1800 mg a day and Vicodin 10-325 at 3 times a day. 1/2 a Xanax as needed. I've tried Lyrica (gave me a horrible stomach ache) and Cymbalta (can only take 60 mg and it doesn't do any good...any higher and I hear people talking so I stopped taking it last week....no withdrawal symptoms at all thank goodness). I actually got up to 2700 mg a day of gabapentin but I was really have some 'mind' issues and had to titrate back down to 1800.

I have seen quite a few dr's and am now trying to determine my next step.

Please share your story with us.

Debi from Georgia

[Texan in UK]

Hello,

I have CRPS and permanent bodily injuries. I'm in advanced stages and am homebound and use a wheelchair.

I was an actor, makeup artist, writer and performer until a drunk driver crashed into me whilst I was driving home from work one day in 2006.

I slowly got worse and developed new symptoms over the years but I never researched anything online and never (until today) utilised forums. I was finally diagnosed about 5 years after the onset of the disease and it was so advanced by then that there was nothing the doctors could do.

In the States I received pain medicine that helped some, and in fact I did some acting and comedy and was still writing until 2008/2009, but in the UK pain meds are frowned upon so I've lost the ability to do the things I once could. I hope one day a doctor will prescribe me meds to help so that I can be productive again. I'm actually much more clear-headed when on medicine and it never made me drowsy or lethargic, no one even knew I was taking them.

I'd love to know what other people with off the charts pain do without pain medicine to help get through the day (I can't even wash my face but every few days now which is very frustrating). I'd also like to find anyone who was made disabled by a drunk driver as it's a pretty big deal to me that someone else caused my disabilities and pain.

Anyway, my point was that I don't know where to introduce myself as a new member. I'm in my 30's and am a bit of an old lady when it comes to technology. Is responding to this post enough or should I make my own intro as a new 'thread'? I couldn't find a search tool to help. I feel like an idiot. I really was University educated, but did all my studying with books, not the internet.

Thank you and I'm sorry if I took over your post. I'll remove it if I can once I know what the heck I'm doing. I usually can't even get online and type like this so I'm trying to knock it all out whilst I can.

[Kitt]

Welcome Texan in UK.

[Lara]

Hello Texan in UK,

Pleased to meet you, although I'm sorry for the health reasons that bring you here.

Welcome to the NeuroTalk Support Groups.

You could have made a new thread, but this is fine.
Please don't worry about where you've posted.
I see you've found the Medications Forum.

We also have an
Reflex Sympathetic Dystrophy (RSD and CRPS) Forum

FAQ - frequently asked questions
General Forum Usage, User Profile Features and Reading and Posting Messages

If you need any help with any of the forum features, please just post again and someone will help you.

take care.

[Darlene]

Texan in UK,

It is great to have youcome and be with us. There are a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene