[cecigutier]

Hi all,

I am very verecently diagnosed with Pseudotumor Cerebri (just discharged from the hospital October 14th) but have been living with the migraine headaches and poor vision for a few years now. Up until now, I've been treated for pain and sent home repeatedly, and honestly being so young, I thought nothing of it.

I'm now 26 years old and growing more and more terrified every minute realizing what a serious condition I'm dealing with. The thought of losing my vision permanently is awful.

I was, like so many others, given Lasix and Topomax to treat the condition for now. My neurologist said that the shunt procedure would be considered if symptoms don't improve over the next few months. Now THIS really scares me

Just wondering if anyone has gone through the shunt procedure and knows what it's like...? I'd like to know what's in store for me with this new condition.

Thank you for your time xx
Ceci

[ginnie]

Welcome to Neuro Talk. I wanted to say hello and tell you, that this is a great site for support. There are others here, who have the same condition. I am so sorry this has happened to you. At the top of the page is a search bar. If you tap that, and type in the disorder, it will bring you to that particuar forum. You can talk to any of the forums, and feel at home. I will keep you in my thoughts and prayers. ginnie

[MelodyL]

Originally Posted by cecigutier

Hi all,

I am very verecently diagnosed with Pseudotumor Cerebri (just discharged from the hospital October 14th) but have been living with the migraine headaches and poor vision for a few years now. Up until now, I've been treated for pain and sent home repeatedly, and honestly being so young, I thought nothing of it.

I'm now 26 years old and growing more and more terrified every minute realizing what a serious condition I'm dealing with. The thought of losing my vision permanently is awful.

I was, like so many others, given Lasix and Topomax to treat the condition for now. My neurologist said that the shunt procedure would be considered if symptoms don't improve over the next few months. Now THIS really scares me

Just wondering if anyone has gone through the shunt procedure and knows what it's like...? I'd like to know what's in store for me with this new condition.

Thank you for your time xx
Ceci

Hi Hon. Welcome to Neurotalk

Try this forum.

http://neurotalk.psychcentral.com/forum2.html

Perhaps if you post your questions about your condition, someone will come along and give you the answers you seek.

You are in my prayers tonight.

Take care,

Melody

[Darlene]

Ceci,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on his condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

[Rrae]

Welcome!

You've come to a very friendly and caring place!
Make yourself right at home. This is a down-to-earth easy atmosphere.

It's great to have you!

Rae