[Lookingup]

Hello Community-Glad to find you here. Hoping I can also be a blessing to others here as much as possible as well . I have Neurapathy, most severe in my feet. I do not have health insurance (company doesn't offer it) and have been going to our County Health System. The appt. center just told me there are no available appointments at anytime. Wow. My pain is acute, unable to sleep, encroaching on my work, life etc even more now. Pain spreading to hands. EMG test said I do not have damaged nerves. Im guessing...maybe this is inflammation? It feels like my feet will burn up. I have been taking 300 mg of Gabapentin 2x day but its not working as much now. They had me on Elavil and Gabapentin plus Celexa. Had a horrific experience ending the taking of Celexa. After taking the Celexa for 6 mos. the Neurapathy started. Anyway, thanks for hearing about my experience. Looking for knowledge to know what my options are now and be an empathetic and understanding heart for you as well I am determined to keep "Lookingup" to the Lord for strength and grace. Peace

[ginnie]

Welcome to Neuro Talk. Glad you found this site. You will find some good information here, as well as compassion. I have PN in my left foot and ankle, calf. Have you tried a physiatrist? I use a lotion that has Ketamine in it, with several other medications, which really numbs the area, and no burning. It doesn't feel good to rub in, but after words it really does provide some relief.
A physiatrist, deals with pain, AND the whole body on a cellular level. This doctor has helped me to get some relief. Keep in touch. We do care about people on Neuro Talk. You will make some friends along the way. Feel free to join in on any conversation, on any forum. ginnie

[Lookingup]

Thanks Ginnie XO SO glad you have that doctor and are finding a solution. Just knowing you have received help gives me hope I will look into that doctor, makes total sense. Perhaps you saved me the expense of going to another Neurologist. I assume a Physiatrist is a pain specialist (?) Thank you for well wishes, Blessings

[Darlene]

Lookingup,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

[glenntaj]

--is a physical structural specialist, specially trained to deal with problems of biomechanics and the interaction of body tissues--bone, muscle, fascia, ligaments, tendons. As a result, many are used to dealing with pain issues and have a more integrative and wholistic view of what might be causing symptoms.

The type of symptoms you may have may be caused by small-fiber neuropathy, which would not show up on standard nerve conduction studies or EMG, as these small, unmeylinated nerves that subsume the sensations of pain and temperature are simply to thin to be measured that way. Documentation of that may take much more specialized testing up to and including skin biopsy.

[Rrae]

Welcome to NT!

I'm so sorry you are battling this neuropathy. I certainly can relate, as it's been my nightmare for the past 7 yrs.
You're sure to find this to be a wonderful place of support and understanding.

In case you haven't found it yet, here's the link to take you to the Peripheral Neuropathy forum:

http://neurotalk.psychcentral.com/fo...aysprune=&f=20

It is LOADED with information and ways to combat it.

It's great to have you here!

Caring,
Rae

[ginnie]

Yes, the physiatrist is a pain specialist first, then they take on more education for another type of certification. They do all pain specialists do, but incorporate, nutrition, PT, massage, and everything thing they can do to help the pain. Lotions including Katemine helps me. I am also going to ask for a patch, forgot what it is called for T1-2-3. Maybe I won't have to take any kind of pill if it worked. I go on Dec. 5th. One thing I do like, is my particular doctor really really listens to you. I sincerely hope you find this kind of physician. "healers" in every sense of the word. All my best wishes to you, never give up hope with regards to pain. ginnie

[purplegirl1935]

I am a mother who is helping her daughter with this terrible disease of porphyria. Need any input anyone has as regards diet that would help this condition .

[ginnie]

I want to say hello today, and offer support. I did look up porphyria. I am so sorry your daughter has this condition. Never loose hope that there can be help for it. Lean on those that love you, and know that this site will support you through all of it. Many compassiate souls here. Try that physiatrist. They just do things from a different perspective and may be able to help. Keep in touch. You will be in my thoughts and prayers. ginnie