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Old 12-12-2012, 01:56 AM #1
Noah091 Noah091 is offline
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Noah091 Noah091 is offline
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Default New here.. My story

Hi everyone, my name is Noah. I am 27 and from Wisconsin.

I'll dive right in here. Heres my story

December 10th was my first doctor's appointment since I went to ER for double vision back on September 19th, 2012. My double vision was weird, as it only affected one eye when I looked to the right. The doctor said it was a sixth cranial nerve palsy, and that the nerve on the right side of my head was not pulling my right eye all the way over to the right side. This was causing each of my eyes to focus in different places when glancing to the right. The double vision was hardly noticable looking at me. Honestly.. I hardly noticed it because I started to turn my head when I needed to look the side. The ER doctor recommend I be admitted to the hospital for further tests. During my stay I had an MRI, CT and LP. The CT and LP came back normal. The MRI showed "spots". I was admitted to the hospital for four days. The last 3 days of my stay I had an IV dose of prednisone which took care of the double vision. The docs explained to me that they thought there was a very good chance that I have MS, but were also considering Lyme and Sarcoid. I was then discharged from the hospital.

Since my hospital visit I really have not had any problems. I have had muscle twitches all over (leg, arms, stomach, butt), and just recently symptoms that appear to be linked to cubital tunnel syndrome (stiff pinky in the mornings with slight "trigger finger" in right hand). Vision seems normal with regards to fine print that I look at from far away being a little blurry. I have attributed most of these things to stress and anxiety, because the possibility of any thing being seriously wrong has gotten me really scared and upset.

Fast forward to December 10, I met with my doctor at the hospital. He seems really unconcerned with everything, saying that hes not convinced that there is really anything wrong with me. He said the spots in my brain could be from bumping my head , playing hockey, bike racing or playing paintball as a kid. He believes starting a medication now would put me in a bad place down the road, as they may neutralize some of the newer and safer medications that are in the pipeline. We took a look at my MRI for the first time, and went through the report. The report listed 5-7 lesions. We went through and looked at each one and the only spot that was even remotely identifiable was a small spot in my corpus collosum, the other "spots" were either hardly visible or not visible to each of us...

I guess what I am asking is what should I do? I feel like I am railroaded in to seeing this doctor as I am prior military and depend solely on the VA for all my healthcare. He basically ended the appointment that any kind of testing would do more harm than good at this point becasue there seems to be nothing wrong with me. He stressed to me that I should live a normal life and relax about this stuff. He wants to see me in 4 months to talk, and then in about 10 months for a follow up MRI. The one thing he suggested was to take 2000 units of Vitamin D3 each day and skip the Omegas.

Overall I am pretty confused. There are a few other MS message boards I visit, but I was recommended by a friend to come here.

Thanks,
Noah
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mg neck prob (12-12-2012)

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Old 12-12-2012, 09:10 AM #2
katmae katmae is offline
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katmae katmae is offline
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Default Noah

Quote:
Originally Posted by Noah091 View Post
Hi everyone, my name is Noah. I am 27 and from Wisconsin.

I'll dive right in here. Heres my story

December 10th was my first doctor's appointment since I went to ER for double vision back on September 19th, 2012. My double vision was weird, as it only affected one eye when I looked to the right. The doctor said it was a sixth cranial nerve palsy, and that the nerve on the right side of my head was not pulling my right eye all the way over to the right side. This was causing each of my eyes to focus in different places when glancing to the right. The double vision was hardly noticable looking at me. Honestly.. I hardly noticed it because I started to turn my head when I needed to look the side. The ER doctor recommend I be admitted to the hospital for further tests. During my stay I had an MRI, CT and LP. The CT and LP came back normal. The MRI showed "spots". I was admitted to the hospital for four days. The last 3 days of my stay I had an IV dose of prednisone which took care of the double vision. The docs explained to me that they thought there was a very good chance that I have MS, but were also considering Lyme and Sarcoid. I was then discharged from the hospital.

Since my hospital visit I really have not had any problems. I have had muscle twitches all over (leg, arms, stomach, butt), and just recently symptoms that appear to be linked to cubital tunnel syndrome (stiff pinky in the mornings with slight "trigger finger" in right hand). Vision seems normal with regards to fine print that I look at from far away being a little blurry. I have attributed most of these things to stress and anxiety, because the possibility of any thing being seriously wrong has gotten me really scared and upset.

Fast forward to December 10, I met with my doctor at the hospital. He seems really unconcerned with everything, saying that hes not convinced that there is really anything wrong with me. He said the spots in my brain could be from bumping my head , playing hockey, bike racing or playing paintball as a kid. He believes starting a medication now would put me in a bad place down the road, as they may neutralize some of the newer and safer medications that are in the pipeline. We took a look at my MRI for the first time, and went through the report. The report listed 5-7 lesions. We went through and looked at each one and the only spot that was even remotely identifiable was a small spot in my corpus collosum, the other "spots" were either hardly visible or not visible to each of us...

I guess what I am asking is what should I do? I feel like I am railroaded in to seeing this doctor as I am prior military and depend solely on the VA for all my healthcare. He basically ended the appointment that any kind of testing would do more harm than good at this point becasue there seems to be nothing wrong with me. He stressed to me that I should live a normal life and relax about this stuff. He wants to see me in 4 months to talk, and then in about 10 months for a follow up MRI. The one thing he suggested was to take 2000 units of Vitamin D3 each day and skip the Omegas.

Overall I am pretty confused. There are a few other MS message boards I visit, but I was recommended by a friend to come here.

Thanks,
Noah
welcome to the forum Noah,I personaly do not have the problums that you are having but I am sure that there is someone here that can give you some answers,I hope you have a nice day
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mg neck prob (12-12-2012)
Old 12-12-2012, 10:24 AM #3
mg neck prob mg neck prob is offline
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mg neck prob mg neck prob is offline
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Default

Hi Noah, I dont blame you for be confused or upset. Im not sure how your VA benefits work but I would ask for copies of all your test and scans and request to be reffered to a neurologist even if its outside of the VA hospital. I think you should listen to you gut--something caused this problem. Sounds like even with your hand and vision that your have neuro symptoms. You might want to try to post again something in the "title" MS ??. That way people who have MS will respond or maybe one of the board moderators can move your post to that area if they read this for you. My father had MS and I know he was diagnosed with a MRI something with the fibers of the spine didint go straight up and down there were patches the spine. His symptoms were right thigh was 6 inches smaller then left. Speech was slurred at times and he would get these shocks that would make his legs buckle and he would fall sometimes and vision problems, horrible headaches. Im not a expert but Im not thinking MS for you -- but I do think you need a neuro consult with your symptoms. Wisning you the best of Luck!!
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katmae (12-14-2012)
Old 12-12-2012, 05:17 PM #4
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Rrae Rrae is offline
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Smile Hello Noah!

Welcome to NT!

You've found a wonderful place for support and understanding!
Make yourself right at home! Look through the forums and post anywhere you feel inclined. People here are easy to talk to in this down-to-earth atmosphere.

Come check out the MS forum! Lots of great people there and plenty of support. Here's the link to get you there;

http://neurotalk.psychcentral.com/fo...aysprune=&f=17


Just holler if you have any questions or need help in finding your way around. You'll find a friend around every corner!

It's great to have you!

Rae

Last edited by Rrae; 12-12-2012 at 05:39 PM.
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Old 12-13-2012, 01:52 AM #5
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Darlene Darlene is offline
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Wink Nice to meet you!!


Noah,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.


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"Life without God is like an unsharpened pencil -- it has no point.
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