New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 12-17-2012, 04:29 PM #1
cbar cbar is offline
Junior Member
 
Join Date: May 2010
Posts: 10
10 yr Member
cbar cbar is offline
Junior Member
 
Join Date: May 2010
Posts: 10
10 yr Member
Unhappy idiopathic small fiber peripheral neuropathy

Hi- It has been about 3 yrs. since I posted on NeuroTalk. My symptoms started 10 yrs. ago after explosive dirrhea in a Third World Country. Had aches, chills, neck ache. Next night I felt a painful jab of pain way up high inside my nose -and I mean way up high. Then I felt my sinus secretions run like water for about 5-6 seconds and then thickened up behind my nose. A few days later, I had waves and waves from head to toe of prickling all over my entire body, that happened about 8 to 10 times. After that my abnormal sensations started in my face and worked it's way down to my feet. Needless to say Full Body. Abnormal sensations like water was running over my face, felt like water was running out of my ears and that things were coming out of my nose. I had 2 skin biopsies a few yrs. ago and was diagnosed with small fiber peripheral neuropathy. One biopsy under my eye/where maxillary sinus would be and the other was on my calf. My sinus secretions had gotten real thick, had sinus surgery and this made things worse. I tried IV Igg and plasmaphoresis- didn't help. About 1 yr. after I got sick, I had a spinal tap which showed WBC at 9, the doctor said that they like it to be under 5. Here I am thinking after 1 yr. and my WBC is still elevaated why didn't they do something. Doctors just said " probably some CNS infection residual". Hey - that would be my brain. One neurologist said I had a brain lesion right on the spot that would control my autonomic nervous system. I tried every drug and nothing ever helped. My sinus issues had gotten worse. I have been irrigating them 2 times a day for 10 yrs., My under eyes swell up, then down, up and down. Talk about stretched out skin under my eyes. 24/7 post nasal drainage, it never, never stops. I checked out allergies. Had shots for 5 yrs., didn't do anything for my sinuses. I am just about to give up. I got this when I was 45 and now I am 55 yrs. old. I am without a job, so is my husband, no health insurance anymore. My husband just keeps saying "We'll get you fixed" My kids think it's all in my head. (I got proof that it's not) - my kids are 30 yrs. old and one is an RN Manager for a brain injury unit. You would think she would understand. NOT!!! She tells me that I don't want to do anything and that I am depressed all the time. Well don't look now but I am. My other twin daughter lives back at home with her 3 kids, 3, 5,6. I was watching them up until a few weeks ago. All I take is 2,000 mg fish oil, calcium citrate with Vit. D. (my levels are good) baby aspirin, vit c 500 mg. and R-liopic acid 100 mg. Please help me, don't know how much longer I can stand this, espically my face and sinuses. Doctor said there is nothing new and nothing to help with SFPN. Any advise or input would be wonderful.
cbar is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
New to this forum - looking for advise on Small Fiber Peripheral Neuropathy wmahla Peripheral Neuropathy 11 09-26-2011 08:57 AM
Hi, am trying to find out information on small fiber peripheral neuropathy alyssasmum New Member Introductions 4 12-15-2010 02:02 AM
I have been Dx with idiopathic small sensory nerve fiber neuropathy and nothing helps Hurtin' Nerves Peripheral Neuropathy 15 04-02-2010 07:03 PM
Small Fiber (Diabetic) Peripheral Neuropathy? tjsmith890 General Health Conditions & Rare Disorders 2 04-22-2008 05:27 PM


All times are GMT -5. The time now is 05:46 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.