Hello- I have a programmable vp shunt and I need to talk to some others who also have a vp. Anyone out there??

Hello, I have had a programable vp shunt for almost 3 years. I had severe hydrocephalus that went un-diagnosed for a very long time. It was caused by a low grade brain stem astrocytomoa. I was diagnosed with the tumor 22 years ago. I take keppra xr and vimpat for simple partial seizures. I feel very tired during the day and I tend to be moody and I lose my temper easily. I know those can be side effects of my meds. I have very bad headaches (daily) and pressure behind my eyes. I have trouble bending down and changing positions when I'm laying down. I have had my shunt setting changed many times. I also have neck pain and now I've been having soreness around my scalp where my shunt is. I'm 31 and I'm and active mom and wife. I have 2 young kids. I'm glad I found this group. I'm wondering if there are any other vp shunt people out there?!

Hi there. I see you have posted on the other forum. Others will come along and give you good info. I just wanted to stop on by, say hi and welcome you to Neurotalk. We are a great bunch of friendly folk and you'll find new friends here.

Take care and again, Welcome!

Melody

Melody, thank you! How will I see if someone replies to me? I actually had a difficult time figuring out where to post.

Lizzy,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Our forum FAQ's should be helpful for learning some of the "how to" -
http://neurotalk.psychcentral.com/fa...b3_board_usage

You can subscribe to your threads, or a forum, & get notifications via email-- here's more info on that-
http://neurotalk.psychcentral.com/fa..._subscriptions


Have you found our Hydrocephalus forum yet?
http://neurotalk.psychcentral.com/forum14.html

Or use the search link in my siggy to locate posts about the shunt - search tool needs to have more than 3 letters/numbers