[VeryNervousMommy]

I am form Texas I am New Here Just wanted to Say "Hi". If anyone has any info on White Matter Disorder or Cereberal Palsy plz feel free to share. I am in a whirlwind right now confused. Just had one child diagnosed with cereberal palsy. Seizures are awfull and last MRI showed somes signs of permanent damage to her brain. Cant find a med that helps.

My youngest was diagnosed with White Matter Disorder and Autism. From birth i knew they were both small and developing a little slow and never quite on track with kids their age. But no huge flags. Until about 3 yrs ago. Kynley started drooling and walking with her tilted and kinda hunched over. (like her head was heavy) Been in and out of Hospitals ever since.She has No Fear and has these Awful RAGES. She Screams as loud as she can for as long as she can. She will hit punch throw things and then like a light switch shes done. She is so loving and wants to be held but in 2 seconds she doesnt want to be touched. She has days where she forgets things we done the day before. But she has a Smile that will melt your heart. And she loves to make people laugh Shes A Mess.

Tasia had her first seizure at 1 yr old. I knew instantly something was wrong. Her speech isnt as clear as it should be, and her balance is terrible constant falls, tripping, its gotten so bad that she broke her elbow during a seizure. She cant sit unattended now even on the potty. She just seems to continue to get worse. She is A Very Smart child Her Grades are Terrific. She loves to read and can write better than I can.She is the sweetest child I have ever met. She is quite and loving always encouraging to her sisters. Always trying to do things that are hard for her. Like Dressing Herself but she tries. She never loses her smile. But I see the pain in her Eyes. Shes my child I see the good and the bad. And I am truly affraid for her. I am affraid for them both.For some reason my heart feels like Kynley is so strong and so fearless She will push through this with No Problem. But Tasia is so weak so tiny and so fragile.I struggle not being able to make things better for them. I just am truly overwhelmed. I still dont even know what These things mean White Matter Disorder? And I was told that Cereberal Palsy doesnt progress, but my child struggles more with each passing day???


Any Info Plz Share......