[SallySven]

Hi, my name is Sally and I have been diagnosed with "Idiopathic PN" since Aug. of 2002. It started after I slipped and fell backward hitting my head on river rocks below our house on June 10, 2002. By August, I was unable to walk because of the pain and my legs felt like I was trying to lift tree stumps from the gound. The neurologist didn't think hitting my head could have caused the PN so tested me for arsenic and lead poisoning since we use well water and vitamin B deficiency. All tests were normal so decided that PN was caused by "unknown causes". I have been on Gabapentin, pain killers and anti-depressants for years. I had to cut back on meds because they were making me too sleepy during the day. Unfortunately, I had another accident in 2010 again hitting my head and PN has now started bothering my hands and arms.

I have been considering trying Neuropathy Support Formula cause I'm tired of the pain and uncomfortable feeling. I am glad I found NeuroTalk.

[mrsD]

Welcome to NeuroTalk:

Before you go any further, you need to find out the actual result of the B12 test. Not "normal", but the actual numbers.

This is because lab ranges in the US are old and outdated, and you could really be low, and labeled "normal" and need to fix that ASAP.

Perhaps a new test, since the old one was years ago?

The neuropathy mixtures sold for people, usually have B12 in them, and don't tell you how to take it correctly, etc.

So please do this first...find out what your results really are.
And if you get a new test, also request a Vit D (which can be very low too in Americans).

This is our peripheral neuropathy forum. There are lots of threads and informational threads there to read about and
then make a decision on which path you should take involving
any supplements.

http://neurotalk.psychcentral.com/forum20.html

[MelodyL]

Hi there. Welcome to Neurotalk. Mrs. D knows her stuff. My hubby also has Idiopathic PN. Hope you find some relief. The PN forum is a great for the latest info on PN. Hope you get relief.

All the best.

Melody

[ginnie]

Welcome to Neuro Talk. I am sorry that you are having so much trouble with PN. I too have it. I see a physiatrist, and take B12, Co Q-10. The B12 is injections. I did not believe suppliments could help. They did within a year, and made my pain much more bearable. Also take a few others like a pro-biotic, and tumeric for acid reflux. I believe there is hope, that you can improve. Keep in touch with Neuro Talk. You found a great place to find good people who will care. ginnie

[SallySven]

Thank you for the info. I recently had bloodwork done so I'll check with my doctor re results. I'll let you know what I find out.

[azoyizes]

Welcome to NeuroTalk. We're so glad you found us!

Check out the forums, and post whenever you like.

The people here are great.

[Darlene]

Sally,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

[Rrae]

Originally Posted by SallySven

Thank you for the info. I recently had bloodwork done so I'll check with my doctor re results. I'll let you know what I find out.

Welcome!

Just wondering if you've got your blood work back.
The PN forum is LOADED with good stuff and supportive people. Alot of things started becoming very clear to me once I got a grasp of what neuropathy can do to a body. It has alot of tricks up it's sleeve, but you can gain the upper hand simply by reading up on it and gaining an understanding.

You certainly aren't alone.
I hope you begin to get some answers very soon!

Rae