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Old 02-12-2013, 08:42 PM #1
twinklee twinklee is offline
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Join Date: Feb 2013
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10 yr Member
twinklee twinklee is offline
New Member
 
Join Date: Feb 2013
Posts: 1
10 yr Member
Arrow Spinal Stenosis, fibromyalgia and perhaps erythromelalgia

Hi, I am new to this site. I was diagnosed with spinal stenosis 15 years ago.
For many years I have been having auras with no headache, neuropathy in my feet which has progressed to a state that resembles or is erythromelalgia (This is more recent, about 3 years). Recently I have begun having some numbness in my hands. I also have been diagnosed with fibromyalgia. I am becoming more and more uncomfortable. I am a Type 2 Diabetic and my blood sugar has been well under control for years. It never occured to me until now that this all could be coming from the stenosis. Do you think this is possible?? Thank you.

Quote:
Originally Posted by LizaJane View Post
My neuropathy began in 1996. By 1999 I had two abnormal EMGs. I think had a bunch of other abnormals. I went to Mayo and had more abnormals.

Today I had an EMG as preparation for spinal surgery and the sensory nerves were normal. I haven't gotten the final report, but he neurologist who did the test said all nerves were normal, except my peroneal, which have never been normal. I do have a new L5 radiculopathy with denervation of the L5 muscles on the left, but it's not new enough to be causing my pain. (that's from the spine)

After seeing the results, one of the neuros said: That means the original diagnosis was wrong, and you never had neuropathy!

Yah, right. I told them I had learned how to care for it--the secret is feeding the mitochondria needed to grow axons (CoQ10, acetyl L carnitine) and taking antioxidants to keep inflammation from causing harm. In addition, keep using the muscles, whether you feel them or not. That was the secret I learned on this forum.

And really, my symptoms are so small compared to 10 years ago. Yes, they're not gone, but they are not that significant.

It can be done. If you've got an idiopathic small fiber neuropathy, or long fiber, and don't have an ongoing CIDP or Sjogren's picture, your peripheral nerves can heal.
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