NeuroTalk Support Groups - Peripheral neuropathy

NeuroTalk Support Groups (https://www.neurotalk.org/)

- New Member Introductions (https://www.neurotalk.org/new-member-introductions/)

- - Peripheral neuropathy (https://www.neurotalk.org/new-member-introductions/184703-peripheral-neuropathy.html)

How often and what type of B12 is in the injections, may or may not work for all people equally.

Do you have testing to see if they are working for you? Why did you get them in the first place? Do you know what your testing
results were?

This is our B12 thread: You'll see it is not so simple! And many doctors are not up to date on it either.

http://neurotalk.psychcentral.com/thread85103.html

Quote:

Originally Posted by Thomas C (Post 961523)

Hello Angela,
I too have been recently diagnosed. I have the tingling and burning in the hands and feet. I don't really have the slipping you describe but if I close my eyes, I lose my balance. It has something to do with somata sensory function. (I won't pretend to say I understand it.) Maybe this is what you have. The nerve conduction test will tell you. Best wishes.

An interesting article:

http://en.wikipedia.org/wiki/Somatosensory_system

[QUOTE=Angela51;961553]

Quote:

Originally Posted by mrsD (Post 961527)

Welcome to NeuroTalk:

Losing balance when your eyes are closed is called Romberg's sign...and comes when B12 is low.

I take B12 shots regularly. Could it be something else?

This happens with CMT as well.

Quote:

Originally Posted by Angela51 (Post 961549)

Hi. Thanks for your reply. No family history of any of the symptoms that I know of. I looked on the orders for the test tomorrow and they said that he is looking for Hereditary and idiopathic peripheral neuropathy. I don't have diabetes. I will post the results. Thanks.

Idiopathic simply means that the cause cannot be identified. As far as family history symptoms could be not that evident but you still could have a type of hereditary neuropathy. There are many.

Hello Angela, welcome to the forums! You really should check out all the information available on the Peripheral Neuropathy forum.

I have hereditary neuropathy or CMT, and I do have severe balance issues as well as experiencing odd sensations that are unfounded, like bugs crawling on me, threads dangling, things brushing against me, etc. I have no feeling in my legs from above the knees down, and I do not feel that my feet have any traction, they often feel as if they are slipping and I need to use my eyes and sometimes my hands to put them where I want them, such as on a sewing machine pedal.

Showering presents the greatest difficulties with balance since it is necessary to close one's eyes. I have a chair now for the shower, but I also have a technique where I wash my hair by leaning both elbows on the tub wall for support. I normally walk with a cane, although I am okay in the house without it except in the middle of the night and on even a few stairs I need support.

My understanding is that all patients with nerve disorders should supplement with B-12, and that the tablets are as effective if not more so than shots. It certainly cannot hurt to try, but if it is CMT it may not make a difference.

Do you have difficulty with inclines, hills, or stairs? This is often an indicator of CMT. Many idiopathic cases are probably hereditary but lack evidence. In the end there is very little difference, what you hope for is that a treatable cause will be found.

Welcome to Neuro talk. You are going to love this site. Lots of good souls here. Lots of compassion and information both. I have PN in my feet, and I follow MrsD's advice on suppliments alot. I don't think she ever shared her medical background, but I know she has one. Good source to find out how to help with suppliments etc. I take B12 shots and a few other things. Wasn't walking well last year at all. Now is much better and I am not limping or in terrible pain. It is tolerable. There is hope for improvement. We all will be here for you. Again welcome, feel right at home. ginnie:grouphug:

Welcome,

You have a lot to handle. I sure hope you get some answers so you can understand what's going on. It helps when you understand the whys and why nots.

There lots of info here. So take you time and look around.

Keep us informed as you go along. You're not alone. We o understand.