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Old 02-28-2013, 05:29 PM #1
Angela51 Angela51 is offline
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Default Peripheral neuropathy

I have been recently diagnosed with peripheral neuropathy. I have a lot of burning pain in my fingers and feet. I have had some numbness in both places. My really weird symptom is that sometimes when I am walking, I feel as if I am slipping and sliding and I nearly fall. This has been going on for about eight months. I have tried different tennis shoes and it makes no difference. I know it's just a sensation, but it feels so real. I am scheduled for a nerve conduction test tomorrow. Has anyone else experienced this?
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Old 02-28-2013, 05:52 PM #2
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Default Welcome!

Hi Angela, welcome to NT. There is neuropathy forum here and you will find lots of advice and support. I too suffer from peripheral neuropathy and I also feel like I am falling when I stand up. Not when I walk, just when I am standing still. I constantly have that sensation that I am loosing my balance. I haven't fallen yet either so I do think it's just the way it makes us feel. Do you know what is causing your PN?
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Old 02-28-2013, 07:07 PM #3
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Default Peripheral neuropathy

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Originally Posted by keepingfaith View Post
Hi Angela, welcome to NT. There is neuropathy forum here and you will find lots of advice and support. I too suffer from peripheral neuropathy and I also feel like I am falling when I stand up. Not when I walk, just when I am standing still. I constantly have that sensation that I am loosing my balance. I haven't fallen yet either so I do think it's just the way it makes us feel. Do you know what is causing your PN?
Thanks for your reply. I don't know just yet what is causing my PN. I don't have diabetes. I looked on the test orders for tomorrow and it looks like he is looking at Hereditary and idiopathic PN. As soon as I hear more, I will post.
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Old 02-28-2013, 05:55 PM #4
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Quote:
Originally Posted by Angela51 View Post
I have been recently diagnosed with peripheral neuropathy. I have a lot of burning pain in my fingers and feet. I have had some numbness in both places. My really weird symptom is that sometimes when I am walking, I feel as if I am slipping and sliding and I nearly fall. This has been going on for about eight months. I have tried different tennis shoes and it makes no difference. I know it's just a sensation, but it feels so real. I am scheduled for a nerve conduction test tomorrow. Has anyone else experienced this?
Hello Angela,
I too have been recently diagnosed. I have the tingling and burning in the hands and feet. I don't really have the slipping you describe but if I close my eyes, I lose my balance. It has something to do with somata sensory function. (I won't pretend to say I understand it.) Maybe this is what you have. The nerve conduction test will tell you. Best wishes.
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Old 02-28-2013, 06:06 PM #5
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Quote:
Originally Posted by Thomas C View Post
Hello Angela,
I too have been recently diagnosed. I have the tingling and burning in the hands and feet. I don't really have the slipping you describe but if I close my eyes, I lose my balance. It has something to do with somata sensory function. (I won't pretend to say I understand it.) Maybe this is what you have. The nerve conduction test will tell you. Best wishes.
Welcome to NeuroTalk:

Losing balance when your eyes are closed is called Romberg's sign...and comes when B12 is low.

http://en.wikipedia.org/wiki/Romberg%27s_test
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Old 02-28-2013, 06:56 PM #6
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Originally Posted by mrsD View Post
Welcome to NeuroTalk:

Losing balance when your eyes are closed is called Romberg's sign...and comes when B12 is low.

http://en.wikipedia.org/wiki/Romberg%27s_test
It also happens with CMT. Proprioception.

http://en.wikipedia.org/wiki/Romberg%27s_test
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Old 02-28-2013, 07:27 PM #7
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Default Peripheral neuropathy

[QUOTE=mrsD;961527]Welcome to NeuroTalk:

Losing balance when your eyes are closed is called Romberg's sign...and comes when B12 is low.



I take B12 shots regularly. Could it be something else?
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Old 02-28-2013, 07:43 PM #8
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How often and what type of B12 is in the injections, may or may not work for all people equally.

Do you have testing to see if they are working for you? Why did you get them in the first place? Do you know what your testing
results were?

This is our B12 thread: You'll see it is not so simple! And many doctors are not up to date on it either.

http://neurotalk.psychcentral.com/thread85103.html
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Old 02-28-2013, 07:46 PM #9
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[QUOTE=Angela51;961553]
Quote:
Originally Posted by mrsD View Post
Welcome to NeuroTalk:

Losing balance when your eyes are closed is called Romberg's sign...and comes when B12 is low.



I take B12 shots regularly. Could it be something else?
This happens with CMT as well.
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Old 03-01-2013, 08:02 PM #10
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Default Hello angela

Welcome to Neuro talk. You are going to love this site. Lots of good souls here. Lots of compassion and information both. I have PN in my feet, and I follow MrsD's advice on suppliments alot. I don't think she ever shared her medical background, but I know she has one. Good source to find out how to help with suppliments etc. I take B12 shots and a few other things. Wasn't walking well last year at all. Now is much better and I am not limping or in terrible pain. It is tolerable. There is hope for improvement. We all will be here for you. Again welcome, feel right at home. ginnie
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