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Old 02-28-2013, 05:29 PM #1
Angela51 Angela51 is offline
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Default Peripheral neuropathy

I have been recently diagnosed with peripheral neuropathy. I have a lot of burning pain in my fingers and feet. I have had some numbness in both places. My really weird symptom is that sometimes when I am walking, I feel as if I am slipping and sliding and I nearly fall. This has been going on for about eight months. I have tried different tennis shoes and it makes no difference. I know it's just a sensation, but it feels so real. I am scheduled for a nerve conduction test tomorrow. Has anyone else experienced this?
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Old 02-28-2013, 05:52 PM #2
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Hi Angela, welcome to NT. There is neuropathy forum here and you will find lots of advice and support. I too suffer from peripheral neuropathy and I also feel like I am falling when I stand up. Not when I walk, just when I am standing still. I constantly have that sensation that I am loosing my balance. I haven't fallen yet either so I do think it's just the way it makes us feel. Do you know what is causing your PN?
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Old 02-28-2013, 05:55 PM #3
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Originally Posted by Angela51 View Post
I have been recently diagnosed with peripheral neuropathy. I have a lot of burning pain in my fingers and feet. I have had some numbness in both places. My really weird symptom is that sometimes when I am walking, I feel as if I am slipping and sliding and I nearly fall. This has been going on for about eight months. I have tried different tennis shoes and it makes no difference. I know it's just a sensation, but it feels so real. I am scheduled for a nerve conduction test tomorrow. Has anyone else experienced this?
Hello Angela,
I too have been recently diagnosed. I have the tingling and burning in the hands and feet. I don't really have the slipping you describe but if I close my eyes, I lose my balance. It has something to do with somata sensory function. (I won't pretend to say I understand it.) Maybe this is what you have. The nerve conduction test will tell you. Best wishes.
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Old 02-28-2013, 06:00 PM #4
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Originally Posted by Angela51 View Post
I have been recently diagnosed with peripheral neuropathy. I have a lot of burning pain in my fingers and feet. I have had some numbness in both places. My really weird symptom is that sometimes when I am walking, I feel as if I am slipping and sliding and I nearly fall. This has been going on for about eight months. I have tried different tennis shoes and it makes no difference. I know it's just a sensation, but it feels so real. I am scheduled for a nerve conduction test tomorrow. Has anyone else experienced this?
Let us know how the tests come out. DNA blood testing for CMT might be helpful - expensive but helpful. There are many types of it. Hope to see you at the PN forum. Any family history of any of the symptoms you are experiencing? Thank you.
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Old 02-28-2013, 06:06 PM #5
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Originally Posted by Thomas C View Post
Hello Angela,
I too have been recently diagnosed. I have the tingling and burning in the hands and feet. I don't really have the slipping you describe but if I close my eyes, I lose my balance. It has something to do with somata sensory function. (I won't pretend to say I understand it.) Maybe this is what you have. The nerve conduction test will tell you. Best wishes.
Welcome to NeuroTalk:

Losing balance when your eyes are closed is called Romberg's sign...and comes when B12 is low.

http://en.wikipedia.org/wiki/Romberg%27s_test
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Old 02-28-2013, 06:56 PM #6
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Welcome to NeuroTalk:

Losing balance when your eyes are closed is called Romberg's sign...and comes when B12 is low.

http://en.wikipedia.org/wiki/Romberg%27s_test
It also happens with CMT. Proprioception.

http://en.wikipedia.org/wiki/Romberg%27s_test

Last edited by Kitt; 02-28-2013 at 07:45 PM.
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Old 02-28-2013, 07:07 PM #7
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Default Peripheral neuropathy

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Originally Posted by keepingfaith View Post
Hi Angela, welcome to NT. There is neuropathy forum here and you will find lots of advice and support. I too suffer from peripheral neuropathy and I also feel like I am falling when I stand up. Not when I walk, just when I am standing still. I constantly have that sensation that I am loosing my balance. I haven't fallen yet either so I do think it's just the way it makes us feel. Do you know what is causing your PN?
Thanks for your reply. I don't know just yet what is causing my PN. I don't have diabetes. I looked on the test orders for tomorrow and it looks like he is looking at Hereditary and idiopathic PN. As soon as I hear more, I will post.
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Old 02-28-2013, 07:12 PM #8
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Default Peripheral neuropathy

Quote:
Originally Posted by Thomas C View Post
Hello Angela,
I too have been recently diagnosed. I have the tingling and burning in the hands and feet. I don't really have the slipping you describe but if I close my eyes, I lose my balance. It has something to do with somata sensory function. (I won't pretend to say I understand it.) Maybe this is what you have. The nerve conduction test will tell you. Best wishes.
Hi. Thanks for your reply. I too lose my balance when I close my eyes. I also lose my balance when I look down or bend over just the slightest. We will see what the test shows tomorrow. Take care.
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Old 02-28-2013, 07:20 PM #9
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Default Peripheral neuropathy

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Originally Posted by Kitt View Post
Let us know how the tests come out. DNA blood testing for CMT might be helpful - expensive but helpful. There are many types of it. Hope to see you at the PN forum. Any family history of any of the symptoms you are experiencing? Thank you.
Hi. Thanks for your reply. No family history of any of the symptoms that I know of. I looked on the orders for the test tomorrow and they said that he is looking for Hereditary and idiopathic peripheral neuropathy. I don't have diabetes. I will post the results. Thanks.
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Old 02-28-2013, 07:27 PM #10
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Default Peripheral neuropathy

[QUOTE=mrsD;961527]Welcome to NeuroTalk:

Losing balance when your eyes are closed is called Romberg's sign...and comes when B12 is low.



I take B12 shots regularly. Could it be something else?
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