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Old 03-11-2013, 09:24 PM #1
Sirmommy32 Sirmommy32 is offline
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Sirmommy32 Sirmommy32 is offline
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Join Date: Mar 2013
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10 yr Member
Default SCS advice

I am new to the forum. I stumbled across this community by doing researching lead migration on my Medtronics unit. I had my SCS implanted in Oct of 2012 and after the horrendous recovery process I felt strong enough to tackle the long, painful and arduous process of discontinuing my narcotic pain meds. I went through withdrawal for about 3 weeks and I honestly would have preferred being shot in the head rather than go through that again. After 5 months of a rather pain free existence I found myself suffering from gastrointestinal issues - bloating, diarrhea and vomitting - as well as migraine headaches (of which I have never experienced before), side and back pains, all over body itching, cramping and a feeling as if I am having my insides bbq'd. I went to my neuro/pain doc today who had x-rays performed that showed one of my leads has 'slipped' and dropped. The Dr. said that this is what is causing the burning/stinging electrical pain and itching. The gastro pain is due to the remaining lead's vibration being so close to my stomach and intestine area. The prognosis is to go through surgery again and have the leads removed and repositioned. I am not happy about this but I was wondering if this has happened to anybody else. Please advise.
Also, my unit is supposed to be used to relieve intercostal nerve pain damage. I had a tumor on my rib cage and when the surgeon removed the tumor he severed a bundle of intercostal nerves (nerves that wrap around you r rib cage and chest wall). The pain from this is similar to a constant runners cramp that doesn't go ever go away which makes breathing very difficult and laboring. Without pain control I have to breath in short gasps so I sound like a perverted breather on a crank call.
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Old 03-12-2013, 01:10 AM #2
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Darlene Darlene is offline
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Darlene Darlene is offline
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Wink Nice to meet you!!

Sirmommy32,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. You will find out we are supportive and relaxing place.

Click on the following forum, there you will find a group of dear friends to help you out.

SCS & Pain Pumps:
http://neurotalk.psychcentral.com/forum118.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.
__________________

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"Life without God is like an unsharpened pencil -- it has no point.
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