[Falaje]

Good afternoon all...

I am new to this site and hoping I find some answers. I have been having left arm and shoulder pain for years and it gone undiagnosed all this time. Let me start by saying I have a neurological disorder called neurofibromatosis which causes tumors to grow on nerves throughout the body. Inside and out. I've had all the tests done for this pain including MRIs, CT Scans, EKG, Echocardiogram, stress test, even a mammogram. All of which came back "normal."

I do however have several tumors in my T4-T5 and T5-T6 region. My pain mgmt Dr sent me to a surgeon. The surgeon sent me back claiming my tumors were not the reason or my pain. Do any of you have similar pain coming from this area? My pain dr seems to think that there may be tumors in the brachial plexus area but are too small to show up on the scans and not pressing the nerves enough to show on the Nerve Conduction Study he did. Sounds like a guess to me. I've tried taking Neurontin and Lyrica for the pain. Both were started at the low dosage. Both made me feel loopy and disconnected. Now he wants me to try Cymbalta and a TENS unit. I still feel like he's guessing.

Can anyone help me with similar stories? I know they have boards for my neurofibromatosis, I've posted there as well. But since this is neurological I figured I could try here too.

Thanks for listening.....

[MelodyL]

Hi there. Welcome

I have a friend with that condition. Known him for many years. Nice guy!!! I wish I could give you some answers about your shoulder pain. I have arthritis so I know pain quite well. When the weather changes, PAIN!! I'm glad you have found the other forum.

Others will come along and say hi and give you some more imput. You are not alone. This is a great place for answers and support.

Take care and again, Welcome!!!

Melody

[Darlene]

Falaje,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place. Sad to hear what you are going through.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.