Hello Everyone. Well where to begin. Maybe by saying hello and that I am glad to meet everyone. Due to my health, I don't always get onto the computer AS much as I would like and as much as I desperately need support, it is really important to me that I try to help others. Giving back is so important.'


With ALL that I do deal with, the Lupus, the Sjogrens, The APS syndrome, the Raynauds, the HORRIFIC chronic pain from my spine issues the Fibro....right now I am out of my MIND with this Peripheal nerve disease.
When it is muggy, I want to jump off of a cliff!!!!!!!!!!!!!!!! I cannot explain the feeling. I no longer sweat...so that is really bad. I will explain more later maybe in a forum where I belong. I think I am here just to introduce myself Thank you for your patience.

I am trying to find out if the estrogen that I take could be making the peripheal nerve disease worse? Goodness!!!!!!!!!!!!!!!!!!!!

Well just imagine, a day like today 56 degrees with 100 percent humidiy. That calls for an ac on, but the heat set on 69 as I get TOO cold, but the DE-humidifier is running on full blast to take the moisture out of the air because I have the creepy-crawlies on my skin!!! NO one really understands in my life
A few try....but how could they?
I cannot be in the sun when that does come out because it could kill me with my Lupus.
Neurotin has been offered, but I am a bit afraid.
Gonna try the BRAND plaquenil, as they are thinking maybe I am allergic to the fillers in the generic.

My rheumy retired after near 40 years with me (SO SAD) and I finally found an amazing one!! I am having a special heart test this coming wed. A chemically induced stress test. Fun seeing I don't sweat. AND my rheumy has me hooked up with a neurologist in June so that is good.

Are there any vitimans? herbs? something to regulate this broken darn body thermostat as I call it? All of these autoimmune issues have pretty much ruined my life. Between the pain and issues I am a prisoner of my own home.
I know I don't sound it today...but I really am positive and I TRY SO, SO very hard to go on. I do admit to being worn down.
Nice to meet you all!!
EllaBlue