[JoelyH]

Hello everyone my name is Joely Hayen I live in Oklahoma city I have been searching for a site like this for a long time. I have had a neck surgery and also back surgery...last year in september i had the spinal stimultor put in my lower back as i was too high of a risk to have an additional back surgery. Now i have been going to neurosurgeon for my neck again he is sending me back to pain management dr to see if he can do a cervical stimulator for my neck. Sorry I,m very frustrated and angry......

[Blessings2You]

Hi Joely, welcome to the community! If you haven't found it yet, here is our Chronic Pain forum: http://neurotalk.psychcentral.com/forum10.html

Someone else may have ideas of other places to look, but that would be a good place to start. I don't blame you for being angry and frustrated--you'll find others here who have walked that path.

[JoelyH]

Hello my name is Joely **...found this site yesterday looking for answers I also have had back surgery and neck surgery had a spinal stimulator put in my back last september it has helped some but i still have permanent nerve damage now having the same issue with my neck...having pain numbness tingling down my right arm and hand..numbness in my pinky left finger...went to neurosurgeon on thursday and he said we can do surgery again and do what they call a decompression but he sent back to pain management doctor yesterday and the doctor is wanting to put in another stimulator for my neck ...lets just say i,m not very happy about this...they also put me on pain meds until i get the surgery again....I have been dealing with this for years and it has taken a toll on me...having severe depression and thinking for a long time that this was all in my mind...but its not...any support or help would greatly be apprechiated.....

[Chemar]

Hi Joely
I moved your second post onto the other thread you created yesterday to keep things together Also edited out your last name as it is usually a good idea not to give your full name for privacy reasons.

I see Blessings left you a link to the Chronic Pain forum
We also have a special forum for spinal cord stimulator discussions here http://neurotalk.psychcentral.com/forum118.html

[Leesa]

Hi Joely ~ I'm sure you ARE angry and depressed. I wouldn't be very happy either.

You know, you CAN get more opinions Joely. Does your insurance allow for that? Most insurances do. You really SHOULD get at least 2 more opinions BEFORE you have ANY surgery. NEVER accept one doctor's opinon, and I'm glad you went to see the Neurosurgeon, but you really should get another opinion, preferable from another Neurosurgeon. If it were me, I think I'd rather have a Neurosurgeon working on my spine than a pain management doctor.

I had 2 open spinal surgeries, but I DID have a stimulator put in -- and that lasted 6 months before it had to be removed. You see, they didn't account for the fact that I was thin -- and the 'generator' of the stimulator started working itself OUT of me!!! I didn't have enough "fat content" in me to hold it in! They should have known that before they even put it IN. So now I have all this scar tissue in my upper back, where the leads were, that's driving me mad!

Anyway -- get another opinion -- I think I would opt for the decompression before I would the stimulator but that's your choice. Maybe the stimulator WOULD be a better choice, I really don't know.

I wish you the very best my friend. Make sure you research what you're having done. God bless and please take care. Hugs, Lee