Hi im mel32 im 32yrs old and have psuedo tumor I currently have two shunts and still suffering with headaches and throwing up its always three weeks or more a month ive been through many neurologist due to what they say which is im to complicated so im finaly seeing this new neurologist who is the first to say ok I want to do a shunt study which in a way im happy becouse my headaches get so bad that I throw up and in the last 6mo have lost 170 something pounds but then im scared everytime I have a spinal tap I end up with a leak and sick and yes I knoe that im already saying im sick and I am but one can only handle throwing up so much right im really struggling I have nobody to talk to that uderstands how I feel is this the norm for people with psuedo or is something else wrong with me this new doc said something about chari malformation but what is that could I havd it I dont know im lost I cant ever seem to say what im thinking becouse I loose it all the time also im always so sick that im always in the hospital or home in bed im on lots of meds and a very strong pain regimen but still seem to be high in the pain department I do have other medical problems like fibro and some disk problem too not sure the name im sorry this is long but I really need help I feel alone and scared all the time I jist want to gdt better so I can have my life back if you know what I mean any body have simular issues like mine or have anything they can suggest please feeling depressed like im never going to be the same again becouse of this

Responded in Headache forum.

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