[BK222]

Hi all

My husband has been unwell & in hospital for a long time & whilst fungal meningitis is strongly suspected, it has not yet been diagnosed despite the usual array of tests: MRI & CT scans, lumbar punctures, blood tests, reviews by many consultants etc

They are now discussing a targeted brain biopsy but are not yet certain as it would be higher risk than they initially thought & would not necessarily provide the answers we are searching for.

They are also running lots of obscure tests as it may be something else entirely.

Just wondered if anyone else has any experience of this? The whole thing has become a ridiculously long & upsetting process & we're none the wiser as he isn't responding to treatment.

Any advice appreciated.

[Darlene]

BK222,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

[BK222]

Thanks for the welcome Darlene, pleased to have found you all here!

[mrsD]

Welcome to NeuroTalk:

I am not sure if their is anyone here with the special expertise you are inquiring about. To the best of my knowledge it is rare, except in people with the misfortune to get epidurals using compounded medications.

We don't have doctors here as a rule, just patients supporting each other.

Sometimes people find your post from Google, so give it time
to attract that larger audience.