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Old 07-30-2013, 05:46 AM #1
skcher98 skcher98 is offline
Junior Member
 
Join Date: Mar 2013
Posts: 16
10 yr Member
skcher98 skcher98 is offline
Junior Member
 
Join Date: Mar 2013
Posts: 16
10 yr Member
Default In Your Head Diagnosis

So I started on this forum a while ago with vertigo, falling etc. etc. I'm hoping someone might read this and have thoughts.

Been dealing with tremors and other annoying neurological symptoms for months ongoing and never ending. My neurologist thinks its Parkinson's. Sends me for a datscan comes back ok. He's stumped and floored because of all these symptoms.

Put me on topomax. No real effect. Symptoms worsen. Puts me on sinimet when he sees me next because I'm shaking so bad. Sinimet works until I get to a dosage that makes me sick. Brings me in. I'm worse of course off any meds. Puts me on Neupro. Works great!!!!

In the meantime my movement disorder appt finally comes. I go yesterday. He sees all these symptoms tells his student all the signs show cognitive and neurological issues. Pretty much ignores half the stuff I try to tell him and then comes back with we're testing you for Wilson's disease but the tremors are probably caused by childhood issues you need to confront. Being tested for Wilson's and he's recommending therapy and a closer relationship with God.

Help!!!!!! I realize stress worsens things but why doesn't it ever stop? Why when I'm laying on a beach do I still twitch and shake and stutter and fall? Do frustrated right now I can't even breathe. I'm one of the most optimistic people in the world and open to a fault. I just don't take that as a diagnosis at all.

I'm fine going to a therapist. I'm just not at all convinced that's a cure. Anyone can relate to the it's all in your head diagnosis?

Ps yes I am B12 deficient and being treated. I know there's a lot of people who ask.
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