Hi,
I found this forum by accident while looking up information re my son & his recent diagnosis. he has worked for a large supermarket for more than 13years with no sick leave at all . Last year he was moved to work on the newspapers & last August collapsed , he had pins & needles in his left arm , it was shaking & then was extremely cold . The hand went into a claw & he could not use it . It took 3 months before any treatment ( some physio has improved it a bit). he also had an issue when evry time he turned his head to the left his voice sounded like gibberish but as soon as he turned back to centre his voice was ok . Still had no diagnosis for this . He has also found that his left leg collapses & he can only stand or walk if his left leg is turned out to the left , if he tries to stand with both legs facing forwards he falls over backwords & has no balance . Despite numerous scans , private examination by a neurologist all the have said is it's peripheral neuropathy & suggested more physio & neuro physio but the waiting list is so long I have now booked a neuro physio privately for next week as otherwise there is no progress. One thing came from one scan was a narrowing of the neural formina on the left . Could this cause the imbalance with his stance. I am so concerned as he has never had any issues before & this has only happened since he was moved to the newspapera where he was having to lift the large bundles out of a deep supermarket trolley up onto a higher desk as they changed the 2 sided cage which used to be used & removed the flatbed trolley for transporting the papers so it was constant bending over . Has anyone else had this type of diagnosis & is there light at the end of the tunnel.

I didn't see your post until now. Sorry I didn't welcome you to Neuro Talk before this. I am sorry for what your son is experiencing. Truly he needs an MRI of his back to make sure no nerves are hitting the spinal cord. I do know the private expense of this as I had no insurance in this country. What you are describing could be so many different things, and we are no doctors here. PN may have some of the symptoms, but I have not heard of the kind of severity in symptoms you are describing. He does have neurological symptoms, the best bet would be to get a good reputable Neurologist for a complete workup. Brain scan too. I am sorry this happened to your son. Let me know how he does. I also know how scarry all this can be for a family. I am here to listen any time you need a friend. ginnie

Stacy,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Sad to hear about what your son is going through. Here is the forum to the PT forum, just click on it and you will find some great friends to help you out.

Peripheral Neuropathy:
http://neurotalk.psychcentral.com/forum20.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Hi ginnie,
Thank you so much for responding, it made me feel so much better having someone listen. The unfortunate thing is he has seen a neurologist ( there was an 8 month waiting list so I paid privately) .he asked for another brain scan & said he would take him via his nhs clinic , however there was a mix up with the letters & the scan was delayed & when we finally got it done & an appointment in his nhs clinic 3 months had gone by .We went for the appointment & he greeted us with 'have we met before?' , naturally this didn't give me much confidence . He then did exactly the same examination that we had paid £250 for 3 months ago . He showed us the brain scans which he said were clear & at the end referred my son for some more intense physiotherapy. That was in May ( still waiting for this intense physio as he is once again at the bottom of the list so I have been paying for Osteopathy treatment each week which seems to be helping but was told it will take a long time. We did get one appointment at the physio dept which was 3 weeks ago to be told by the physio that he could not help but referred him to neuro physio dept and guess what we are now on their waiting list ( neverending waiting here in wales -terrible service. I have found a private neuro physio not too far away & have booked for an assessment next Tuesday ( fingers crossed they can work out how to help ) . I have obtained copies of all the specialists letters from my doctors surgery who are very helpful & not happy with the way he has been neglected by the NHS.
Once again thank you for being there. I'll let you know how it goes.
regards wizard