[sarahbear]

Hi,
I Hope my words find you well and i am so glad to find some help and support. My story is long but i try to just hit the high lights..lol

When i was young i was diagnosed with neurocardogenic syncope,gerd, and various allergic enteropathies. I was tested and learned to deal with it. Lived relatively normal till last year. I became very ill. Lost 45 lbs from...ahhem+ tummy troubles + + blush + and my automatic issues resurfaced. Bp chronically low, heart arrhythmias, heart block,pvcs,afib,tachy and Brady episodes. Extreme fatigue and weakness only made it worse i was bedridden. That lasted 8 months. Then i knew the anxiety would kill me if my mystery illness didn't. So i crawled and clawed my wayback to semi functional.

I found a neurologist who tested me and diagnosed me with pots, small fiber neuropathy and now myasthenia gravis (lems is possible but very small chance). All my mg worktops came back yucky and now waiting on ct results.

I'm currently untreated and very scared and am hoping for some words of wisdom and friendship that can relate. I feel very only in this and know from the year and half it took me to get one doctor to listen,i just be my own advocate.

Anyways...lol sorry so long...thanks for reading if u managed to get through all that..=)
~Bear