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Old 09-28-2013, 06:03 AM #1
Jason93 Jason93 is offline
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Jason93 Jason93 is offline
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Default Freaked out and looking for answers

Hi there, I accidentally posted this in another section by mistake. Anyway my name is Jason and I'm from New Hampshire.

I'm so glad I found this site and all the great people and info. So I'm in need of finding some answers or a path to follow to get the answers. On July 13th I had a fractured talus and a trimalleolar (7 breaks all around the ankle joint). Two days later they tried to cast me but the burning pain on the bottom of my foot was brutal. So I left in a walking boot as my cast. Certain parts of my feet were burning so bad. The baby toe down the side of my foot, my big toe and below it on the ball. All of the areas were extremely swollen and red where I got the burning pain. Around 4 weeks the pain started to lessen and by week 6 I had no pain. Prior I did experience the needle like pins and sharp pains.

All along when my foot goes down it would turn purple, elevate it and it goes back to normal color. When I put it down it swells up and turns purple and on the top right around the pinky toe right below it, it starts to pool or sell and then I get the shooting stabbing pains with burning sensation.

I asked my orthopedic about this and he said sounds like rsd/cprs. I went to a neurologist and at the five week mark I had too much swelling, so I went back to her yesterday (almost 11 week) she scheduled me for meg tests for this coming Monday.

I also have an appointment with a pain mgmt clinic on Wednesday. I'm freaking out right now because I appear to have a lot of the symptoms. I will mention that at 8 weeks only one of my 7 bones were starting to heal. The ct scan said diffusers osteopenic probably due to disuse.

So I still have swelling because instill have broken bones. Also when indomthe tinel test I get the positive meaning I van immediately feel the electric shock so I thought maybe could have tarsal tunnel. I can't walk yet and when I try to weight bare the biotin of my foot isnunbearablenwith a sharp pain that alsomfeelsvery fat and pressurized almost like its compressing a nerve.

I apolplogize for the long winded response but I'm really stressed out as I can't seem to get straight answers and Ifimdomhabe it I want to treat it immediately as a week from Saturday is three weeks. My main problems are purple leg when not elevated along with swelling and too painful to pit weight on. Also the underside of the foot in certain places feels extra soft and hyper sensitive. I also have a shiny smooth looking patch of skin where my largest swelling occurred on the inside of the ankle and its still very swollen so I'm not sure if its shiny skin like cprs or just stretched out and smooth.

I sincerely appreciate any and all advice, opinions etc. I am an extremely active healthy or was 37 year old male who needs to be on is feet for work . I'm wondering if its possible I have nerve damage that is causing this or if its cprs. If it is what should my next steps be? Many thanks.

I have included a few pic at different stages. The two red ones of my feet are very recent and that's what happens when they go down.
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Old 09-28-2013, 08:21 AM #2
Jason93 Jason93 is offline
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Default

Also since its 11 weeks today, if you think I have cprs what should be the immediate steps to take to try and put it in remission? I'm sorry for the frantic emails but I'm beside myself here. Thank you all in advance.
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Old 09-30-2013, 12:44 AM #3
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Darlene Darlene is offline
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Wink Nice to meet you!!


Jason,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Sad to hear about what you have had to deal with at this time. Also I see where you are roaming around here. There are a some great friends in the rsd/cprs forum. Hope everything turns out ok for you.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.
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"Life without God is like an unsharpened pencil -- it has no point.
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Old 10-04-2013, 04:25 PM #4
kellyma1973 kellyma1973 is offline
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Default Go to someone with CRPS experience

Hey Jason. I'm also new here, just turned 40, serious injury in the past but otherwise healthy, but have had this for over a decade. My recommendation is Find a real specialist, even if it means traveling to another city - maybe Boston.

Orthopedic docs are not going to be much help. If the pain clinic prescribes narcotics, it will feel better, but just a bandaid solution that doesn't treat the root cause. Make sure you see someone who treats a lot of CRPS patients.

Everything I read says early diagnosis and treatment is critical. Trust me, you don't want to deal with it long term. Mine in is my arm, not leg, but it's a real problem. That picture is pretty scary. Get professional assistance asap and best of luck!

Mack

Quote:
Originally Posted by Jason93 View Post

I apolplogize for the long winded response but I'm really stressed out as I can't seem to get straight answers and Ifimdomhabe it I want to treat it immediately as a week from Saturday is three weeks. My main problems are purple leg when not elevated along with swelling and too painful to pit weight on. Also the underside of the foot in certain places feels extra soft and hyper sensitive. I also have a shiny smooth looking patch of skin where my largest swelling occurred on the inside of the ankle and its still very swollen so I'm not sure if its shiny skin like cprs or just stretched out and smooth.

I sincerely appreciate any and all advice, opinions etc. I am an extremely active healthy or was 37 year old male who needs to be on is feet for work . I'm wondering if its possible I have nerve damage that is causing this or if its cprs. If it is what should my next steps be? Many thanks.

I have included a few pic at different stages. The two red ones of my feet are very recent and that's what happens when they go down.
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