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Old 08-11-2013, 10:09 PM #1
Austins Mom Austins Mom is offline
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Default My 1 year old son with arachnoid cyst and VP Shunt

Hi my name is Maggie. My son celebrated his 1st birthday today. It was an exciting day. It's been a heck of a year that passed. At 4 months old, We discovered a large arachnoid cyst on the left side of his head due to rapid head growth. He has had 4 surgeries to date with the last being in march. Since then his pressure has been good and the shunt is working properly.

The cyst seems to have drain all the way! although I am a bit concerned about some outbursts he has every few days. He gets so irritated and rolls around in what seems to be pain and ended up throwing up. Recently we started medication for reflux that has helped stop the vomiting but he still seems to have the episodes. It is so hard for me to know what is bothering him. I can't tell if its his head, stomach or even teething.
I feel so bad that I don't know what to do. We seen a neurologist this week to discuss the possibility that its headaches but I am hesitant to start an antidepressant if that may not be the cause. I was hoping for a little feedback from others who have shunts about how it makes you feel. I really can't even imagine myself.
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Old 08-12-2013, 02:10 AM #2
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Darlene Darlene is offline
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Wink Nice to meet you!!

Maggie,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Click on the following forum there a a good number of fellow friends there to help you out.

Colloid Cyst:
http://neurotalk.psychcentral.com/forum54.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.
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"Thanks for this!" says:
Austins Mom (08-12-2013)
Old 11-01-2013, 07:55 PM #3
kyne kyne is offline
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kyne kyne is offline
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hello my name is kyne. i can't answer your question directly but i am also new here and my son also has a large arachnoid cyst in L temporal lobe. he is 3.5yrs. he didn't have a shunt yet, he had a craniotomy fenestration first (we are waiting to see if he will need a shunt). im sorry i can't answer your question but i would like to connect with you because i dont know of anyone else who even has anything similar to my son so i would love to stay in contact with you and maybe we can share. we have also had a difficult several months.

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Old 11-02-2013, 10:57 PM #4
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Join Date: Sep 2006
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Wink Great to meet you!!


kyne,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene
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