Hello everyone.

clueless · 11-20-2013, 01:03 AM

New member just saying hello and hoping I can find some answers here.

St George 2013 · 11-21-2013, 10:39 PM

Nice to meet u !

Can u tell us about yourself ? I'm usually on the PN forum. I have small fiber neuropathy that effects my feet and hands.

Debi from Georgia

ShakyNNumb · 11-21-2013, 11:08 PM

Quote:

Originally Posted by St George 2013

Nice to meet u !

Can u tell us about yourself ? I'm usually on the PN forum. I have small fiber neuropathy that effects my feet and hands.

Debi from Georgia

I would love to know more about your small fiber neuralgia. I think I may have it but am still going through testing. What were your symptoms and how long did it take to get diagnosed?

What do you do for it?

Any help would be greatly appreciated.

St George 2013 · 12-06-2013, 08:40 AM

Quote:

Originally Posted by ShakyNNumb

I would love to know more about your small fiber neuralgia. I think I may have it but am still going through testing. What were your symptoms and how long did it take to get diagnosed?

What do you do for it?

Any help would be greatly appreciated.

Nice to meet u

I had a skin punch biopsy on Sept 10th and got my results on Sept 19th. What type of testing are they doing on you ? Mine is from diabetes and chemo. I had burning in my toes at the end of the work day for a couple of years....never really worried about it and didn't treat it with anything. From Dec 2012 to March 2013 I had 6 rounds of chemo (taxol/carbo) and a month after the chemo ended I could barely walk. Electrical currents running from mid foot to toes on each foot, burning, stinging, numbness and severe pain. I also had the electrical currents and numbness in my hands but it was mild compared to my feet. My PCP started me on 100 mg of gabapentin 3 times a day in May. I now have a neuro and I've just titrated up to 2700 mg a day of gabapentin. I still have severe pain throughout the day and sometimes the pain is just annoying. It ebbs and flows all day long. I still have all the symptoms and am unable to work, shop, walk any distance, drive and even riding in the car is hard for me. I also have swelling in my feet. I treat my pain with vicodin....1/2 a pill 4 times a day. Nothing else seems to work. My oncologist brushed me off when I asked if the chemo could have kicked in the neuropathy to this extent. So off I went to dr's and am still on my journey to find the perfect team of dr's for me.

My biopsy came back that my feet are devoid of A and C fibers and the conclusion was severe small fiber neuropathy. The foot dr says nothing can be done at this point except pain mgmt. He said my fibers are 0 on a scale of 0 to 15 and that the nerves will not regenerate.

I hope this info helps you. There are a lot of threads on this site that you should go through to find information that might be useful to you.

Please let me know what your tests reveal.

Debi from Georgia

MelodyL · 12-06-2013, 09:43 AM

Quote:

Originally Posted by clueless

New member just saying hello and hoping I can find some answers here.

Hi there.

Can you be a bit more specific about what you have been diagnosed with, your symptoms, etc. We have a great bunch of friendly (dare I say SMART members), who just might be able to help you.

Just wanted to say hi and welcome. Keep posting.

Take care, Melody

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