[heatherc2010]

Hello,
I was recenlty diagnosed with psedutumor ceebi or iih in april curreblty have had two spinal taps both went horriable i also have papelidema due to the pressure .I live in va but there isnt many dr that treat this in va so next week i am going to a neuro opthomologist at john hopkins dr submarian im not sure what to expect but my neurologist is not helping and my opthomologist ive only seen once and they did a vision field came back abnormal but not toobad since thoigh i have white film that comes unexpectely and i cant see for periods of time also have blirred vision and cant see out of my perpheral vsion so hard for me to drive which i still do .Thank u for reading and could anyone tell me what the neuro opthomologist will do to help? Like i said i cant tolerate topamax or diamox so would the next step be surgury like a shut ?

[Kitt]

Welcome heatherc2010.

Someone will be along to help.

[Lara]

Hi Heather,
Welcome to the NeuroTalk Support Groups.

The best way to find posts regarding Pseudotumor Cerebri is to
use the Forum Search Feature that I'll post below.

There are posts scattered around quite a number of the forums here,
not all in one particular place.

NeuroTalk Forum Search

Just type in Pseudotumor Cerebri.

A tip for the search feature is to click where it says "posts" rather than "threads"
down at the bottom left. You'll find more posts that way.

You could also post over in
General Health Conditions and Rare Disorders Forum

If you need any help with the forums please just post here again and
someone will help you out.

[Darlene]

Heather,

It is great to have you come and be with us. You will find a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene