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Old 01-15-2014, 08:20 PM #1
joby7165 joby7165 is offline
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joby7165 joby7165 is offline
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10 yr Member
Default Hello all,new to site and CRPS as well

Hello everyone my name is Joe,

I was diagnosed with CRPS on New Years Eve ( Happy New Year!! ,LOL!! ) Hey,if you can't laugh as they say. Last January I got a bad concussion at work that left me with chronic migraines,dizziness and memory issues. I've been dealing with a great neurologist since September,previous one,not so great. None of the typical drugs have helped so in November he gave me botox injections,still waiting to see if they'll help.Now for the CRPS issue.

On December 3rd I was just getting over a three day monster migraine. I was dizzy,lost my balance and hit my right hip on the outside corner of my metal bed frame. It took me awhile before I could attempt standing and when I did try I fell again but landed on my right arm,too much pain to move.

Went to the ER,nothing broken,just badly bruised. Several days later my right foot swelled up,then my lower right leg,then around my right eye which looked like an allergic reaction.All the swelling went away 2 weeks later but then both my hands began to tingle. A few days later my right hand began to hurt like a sun burn,then worse like I stuck it in a wood stove.Then the pinkie and ring finger on my left hand. It's always worse at night and I no longer sleep at night but during the day when I can. The pain isn't horrible like I've read from other sufferers.

I have started occupational therapy and even though I am confident in the knowledge of my therapist I don't think she has seen my condition that often.I am sorry to run on this long but I wanted to give you all my info for I know that those of you on this site are sufferers as well and you know how I feel. I've read that the sooner you treat this condition the better chance I have of controlling it but that's no guarantee. I guess my main concern is even with rehab how quickly will this disease progress and what should I expect? I know there are no guarantees but any info would be greatly appreciated,thank you so much and to those that created this site words can't express my gratitude.
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Old 01-16-2014, 09:58 AM #2
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Darlene Darlene is offline
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Wink Greetings!!


Joe,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

CRPS:
http://neurotalk.psychcentral.com/forum10.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene
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Old 01-16-2014, 01:41 PM #3
joby7165 joby7165 is offline
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Default

Thanks Darlene for the friendly welcome. I will definitely keep you all up to date on my CRPS in fact I just got workers comp approval today for an MRI of my cervical spine. My neurologist who I've been dealing with since August wants to rule out any issues in my spine.

He's been great and even though I have text book symptoms of type 1 CRPS he's just being cautious.I only wish everyone had a neurologist as talented and caring as this guy.I'm having the MRI tomorrow so I'll let you know.

Take care Darlene

Joe
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Old 01-17-2014, 12:18 AM #4
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Thumbs up

Yes I will agree with you about neuro. I found one who listened and help me out after so many years. I guess you could say we are very lucky. My thoughts and prayers are with you.

Darlene
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