Hi there. I live in the UK. 26 years ago
I was diagnosed with Benign Familial Cramp syndrome and associated muscle hypertrophy. I have been on Quinine Sulphate 300mg at nigh ever since. Exercise of any sort makes the muscles twitch and I rarely get through a night without cramp. If I have any alcohol I get cramp that starts in my feet and progresses in opposing muscles at the same time, as you can imagine I rarely drink alcohol.

Just recently I have noticed involuntary twitching in various muscles, eg forearm if I've been using the computer mouse. Most nights I get crazy twitching (like there is something alive and wriggling inside my calf muscles). The cramps were horrendous and debilitating when I was pregnant both times but then improved a lot when I had to have a total hysterectomy in 2000 and I have been on oestrogen only HRT gel since.

I wonder if it could be something to do with the fact that I would likely be going through the menopause now anyway (I still get hot flushes if I miss the HRT gel)

The Neurologist I used to see who arranged the muscle biopsy 26 years ago has now retired. When I have googled I now find stuff about BFS how should I go about finding a neurologist with a special interest in cramps/fasiculation or would any Neurologist be able to help. Any comments or help would be greatly appreciated, thanks

Scrappydog,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Click onto the following forum, there you will find some friends to help you out.

http://neurotalk.psychcentral.com/forum22.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene