[larsendondero]

A year and a half ago Gil and I were hiking, fishing, rafting the Santiam River on pontoons and enjoying our kids and grand kids. Then the headaches started and nothing made by any pharm company could touch them. Nobody in Boise was helping, hospitals kept sending him hope after a fee days, one did a blood patch then sent him home completely deaf in his right ear. Fast forward four months of this and Gil is dying.

He is holding nothing down and the local hosp has unhooked his iv because they Sayyid they were just basically treating his pain... I cried, begged them not to let him starve, he is six feet five inches and his weight was 160 lbs, still,...they didn't want to touch it.

I packed clothes and personal things, left our house and everything in it and brought him 8 hours away to Oregon health and sciences university....they saved his life. That was one year ago....he has suffered complete loss of hearing and sight on his right side, has only 40% hearing in the left side and what its left of his eyesight is fading fast. Out took this long to diagnose this most complicated and rare case...his neuro-ophthalmologist has taken his case to national conferences...

.we are blessed with wonderful Dr's but nobody can tell me....how do I help a strong man learn to be blind, deaf and forever unbalanced without a walker... A man who spent 17 years as a volunteer fireman while painting houses and single handedly raising five children...four of whom were not biologically his. He's been so wonderfully accepting until now. Reality is hitting him like a huge boulder and it hurts to see and hear his pain... I need to help him stay afloat...he's so wonderful